Living with ulcerative colitis.

Research output: Contribution to journalArticle

Abstract

This pilot study was undertaken to describe the experience of living with ulcerative colitis. Using a phenomenological approach, three subjects with diagnosed ulcerative colitis were interviewed and asked to describe what it was like to live with ulcerative colitis. Data from transcriptions of the audiotaped interviews were gathered and analyzed. Five major themes arose: the uncertainty surrounding exacerbations; the fear and humiliation surrounding stool incontinence; the desperate need to find successful treatment; the profound effect on family life, social life, and work; and, finally, the feeling of being controlled by the disease. Findings detail the impact of the disease on the subjects' lives and provide insight into this devastating disease. Implications for nursing practice and research are discussed.

Original languageEnglish (US)
Pages (from-to)60-64
Number of pages5
JournalGastroenterology nursing : the official journal of the Society of Gastroenterology Nurses and Associates
Volume19
Issue number2
StatePublished - Mar 1996
Externally publishedYes

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Ulcerative Colitis
Nursing Research
Uncertainty
Fear
Emotions
Interviews

ASJC Scopus subject areas

  • Advanced and Specialized Nursing
  • Gastroenterology

Cite this

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abstract = "This pilot study was undertaken to describe the experience of living with ulcerative colitis. Using a phenomenological approach, three subjects with diagnosed ulcerative colitis were interviewed and asked to describe what it was like to live with ulcerative colitis. Data from transcriptions of the audiotaped interviews were gathered and analyzed. Five major themes arose: the uncertainty surrounding exacerbations; the fear and humiliation surrounding stool incontinence; the desperate need to find successful treatment; the profound effect on family life, social life, and work; and, finally, the feeling of being controlled by the disease. Findings detail the impact of the disease on the subjects' lives and provide insight into this devastating disease. Implications for nursing practice and research are discussed.",
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