Living kidney donors and their family caregivers: Developing an evidence-based educational and social support website

Laura A. Taylor, Nasreen Bahreman, Matthew J. Hayat, Frank Hoey, Geetha Rajasekaran, Dorry L. Segev

Research output: Contribution to journalArticle

Abstract

Context: Although graft and patient survival rates for living kidney donation are improved, some healthcare providers question whether volunteer donors and their informal caregivers are fully informed of the donation process and the risks involved. Donors and their family caregivers have reported that they receive limited information about the predonation and donor recovery process. Offering web-based information and social support is one way to address this gap. Strategy: Living kidney donor candidates and their family caregivers participating in the Living Donor Information Network for Caregiving (LINC) have access to a variety of online informational resources and a social support discussion forum throughout their living kidney donation experience. Strategies in the development and implementation of an online information and social-support resource are presented. Conclusions: Use of the LINC website for information and support may assist health care providers in identifying potential barriers in the current donation process and provide direction for enhancing knowledge and confidence among donors and family caregivers.

Original languageEnglish (US)
Pages (from-to)119-128
Number of pages10
JournalProgress in Transplantation
Volume22
Issue number2
DOIs
StatePublished - Jun 1 2012

ASJC Scopus subject areas

  • Transplantation

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