@article{2820357fe4ee40a99394134581d7a8fa,
title = "Linking Participatory Action Research on Health Systems to Justice in Global Health: A Case Study of the Maternal and Neonatal Implementation for Equitable Health Systems Project in Rural Uganda",
abstract = "An ethical framework called “research for health justice” provides initial guidance on how to link health systems research in low- and middle-income countries to health equity. To further develop the largely conceptual framework, we tested its guidance against the experience of the Maternal and Neonatal Implementation for Equitable Health Systems (Manifest) project, which was performed in rural Uganda by researchers from Makerere University. We conducted 21 in-depth interviews with investigators and research implementers, directly observed study sites, and reviewed study-related documents. Our analysis identifies where alignment exists between the framework{\textquoteright}s guidance and the Manifest project, providing initial lessons on how that was achieved. It also identifies where nonalignment occurred and gaps in the framework{\textquoteright}s guidance. Suggestions are then made for revising and expanding “research for health justice”.",
keywords = "equity, global health, health systems research, justice, low- and middle-income countries, participatory action research, research ethics",
author = "Bridget Pratt and Hyder, {Adnan Ali}",
note = "Funding Information: Ethical approval for the study was obtained from the Johns Hopkins Bloomberg School of Public Health Institutional Review Board and the Makerere University School of Public Health{\textquoteright}s Higher Degrees Research and Ethics Committee. Funding Information: The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This study was supported by an Australian National Health and Medical Research Council (NHMRC) Early Career Sidney Sax Public Health Overseas Fellowship (Award No. 1052346) to B.P. The contents of this article are solely the responsibility of the authors and do not reflect the views of the NHMRC. B.P. and A.A.H. were also supported by Future Health Systems, which is funded by the U.K. Department for International Development. Funding Information: Although FHS is funded by the U.K. Department of International Development (DFID), not all projects performed as part of the consortium{\textquoteright}s research program are primarily supported by DFID. The Manifest project was largely funded by Comic Relief. Publisher Copyright: {\textcopyright} 2017, {\textcopyright} The Author(s) 2017.",
year = "2018",
month = feb,
day = "1",
doi = "10.1177/1556264617741022",
language = "English (US)",
volume = "13",
pages = "74--87",
journal = "Journal of Empirical Research on Human Research Ethics",
issn = "1556-2646",
publisher = "University of California Press",
number = "1",
}