Maladies neuromusculaires mettant en jeu le pronostic vital: Intérêt d'une démarche palliative pour les enfants et leurs familles

Translated title of the contribution: Life-threatening neuromuscular disorders: Interest in palliative care for children and their families

Research output: Contribution to journalArticle

Abstract

Traditionally palliative care has been associated with end-of-life care and abandonment of hope. Newer models of palliative care are now being integrated from the time of diagnosis for chronic, life-threatening conditions, creating a new vision of hope for the children and families affected by these disorders. In this paper we describe a broader conceptualization of pediatric palliative care and examine its applicability to two common life-threatening pediatric neuromuscular diseases.

Translated title of the contributionLife-threatening neuromuscular disorders: Interest in palliative care for children and their families
Original languageFrench
Pages (from-to)283-290
Number of pages8
JournalMedecine Palliative
Volume9
Issue number6
DOIs
StatePublished - Dec 1 2010

Keywords

  • Duchenne muscular dystrophy
  • Hope
  • Pediatric palliative care
  • Quality of care
  • Spinal muscular atrophy type I

ASJC Scopus subject areas

  • Oncology
  • Oncology(nursing)
  • Anesthesiology and Pain Medicine

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