Let's talk about inclusion: A report on patient research partner involvement in the GRAPPA 2015 Annual Meeting

Maarten De Wit, Willemina Campbell, Laura C. Coates, Dafna D. Gladman, Jana James, Chris A. Lindsay, Roland MacDonald, Anna R. Moverley, Alexis Ogdie, Ana Maria Orbai, Denis O'Sullivan, Andrew Parkinson, Ingrid Steinkoenig, William Tillett, Niti Goel

Research output: Contribution to journalArticlepeer-review

Abstract

Members of the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) have worked since 2012 to include the patient perspective in their psoriatic arthritis (PsA) research as well as in their annual meetings. Herein, patient research partners (PRP) report the progress made in their experience at these GRAPPA meetings and discuss their perception of the challenges that remain in ensuring that patients have a voice in PsA outcome research.

Original languageEnglish (US)
Pages (from-to)970-973
Number of pages4
JournalJournal of Rheumatology
Volume43
Issue number5
DOIs
StatePublished - May 2016

Keywords

  • Grappa
  • Patient participation
  • Patient research partners
  • Psoriasis
  • Psoriatic arthritis

ASJC Scopus subject areas

  • Rheumatology
  • Immunology and Allergy
  • Immunology

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