Let's talk about inclusion: A report on patient research partner involvement in the GRAPPA 2015 Annual Meeting

Maarten De Wit; Willemina Campbell; Laura C. Coates; Dafna D. Gladman; Jana James; Chris A. Lindsay; Roland MacDonald; Anna R. Moverley; Alexis Ogdie; Ana Maria Orbai; Denis O'Sullivan; Andrew Parkinson; Ingrid Steinkoenig; William Tillett; Niti Goel

doi:10.3899/jrheum.160117

Let's talk about inclusion: A report on patient research partner involvement in the GRAPPA 2015 Annual Meeting

Maarten De Wit, Willemina Campbell, Laura C. Coates, Dafna D. Gladman, Jana James, Chris A. Lindsay, Roland MacDonald, Anna R. Moverley, Alexis Ogdie, Ana Maria Orbai, Denis O'Sullivan, Andrew Parkinson, Ingrid Steinkoenig, William Tillett, Niti Goel

School of Medicine

Research output: Contribution to journal › Article › peer-review

5 Scopus citations

Abstract

Members of the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) have worked since 2012 to include the patient perspective in their psoriatic arthritis (PsA) research as well as in their annual meetings. Herein, patient research partners (PRP) report the progress made in their experience at these GRAPPA meetings and discuss their perception of the challenges that remain in ensuring that patients have a voice in PsA outcome research.

Original language	English (US)
Pages (from-to)	970-973
Number of pages	4
Journal	Journal of Rheumatology
Volume	43
Issue number	5
DOIs	https://doi.org/10.3899/jrheum.160117
State	Published - May 2016

Keywords

Grappa
Patient participation
Patient research partners
Psoriasis
Psoriatic arthritis

ASJC Scopus subject areas

Rheumatology
Immunology and Allergy
Immunology

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10.3899/jrheum.160117

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De Wit, M., Campbell, W., Coates, L. C., Gladman, D. D., James, J., Lindsay, C. A., MacDonald, R., Moverley, A. R., Ogdie, A., Orbai, A. M., O'Sullivan, D., Parkinson, A., Steinkoenig, I., Tillett, W., & Goel, N. (2016). Let's talk about inclusion: A report on patient research partner involvement in the GRAPPA 2015 Annual Meeting. Journal of Rheumatology, 43(5), 970-973. https://doi.org/10.3899/jrheum.160117

De Wit, M, Campbell, W, Coates, LC, Gladman, DD, James, J, Lindsay, CA, MacDonald, R, Moverley, AR, Ogdie, A, Orbai, AM, O'Sullivan, D, Parkinson, A, Steinkoenig, I, Tillett, W & Goel, N 2016, 'Let's talk about inclusion: A report on patient research partner involvement in the GRAPPA 2015 Annual Meeting', Journal of Rheumatology, vol. 43, no. 5, pp. 970-973. https://doi.org/10.3899/jrheum.160117

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abstract = "Members of the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) have worked since 2012 to include the patient perspective in their psoriatic arthritis (PsA) research as well as in their annual meetings. Herein, patient research partners (PRP) report the progress made in their experience at these GRAPPA meetings and discuss their perception of the challenges that remain in ensuring that patients have a voice in PsA outcome research.",

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AU - James, Jana

AU - Lindsay, Chris A.

AU - MacDonald, Roland

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Let's talk about inclusion: A report on patient research partner involvement in the GRAPPA 2015 Annual Meeting

Abstract

Keywords

ASJC Scopus subject areas

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