Let's talk about inclusion: A report on patient research partner involvement in the GRAPPA 2015 Annual Meeting

Maarten De Wit, Willemina Campbell, Laura C. Coates, Dafna D. Gladman, Jana James, Chris A. Lindsay, Roland MacDonald, Anna R. Moverley, Alexis Ogdie, Ana-Maria Orbai, Denis O'Sullivan, Andrew Parkinson, Ingrid Steinkoenig, William Tillett, Niti Goel

Research output: Contribution to journalArticle

Abstract

Members of the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) have worked since 2012 to include the patient perspective in their psoriatic arthritis (PsA) research as well as in their annual meetings. Herein, patient research partners (PRP) report the progress made in their experience at these GRAPPA meetings and discuss their perception of the challenges that remain in ensuring that patients have a voice in PsA outcome research.

Original languageEnglish (US)
Pages (from-to)970-973
Number of pages4
JournalJournal of Rheumatology
Volume43
Issue number5
DOIs
StatePublished - May 1 2016

Fingerprint

Psoriatic Arthritis
Psoriasis
Research
Outcome Assessment (Health Care)

Keywords

  • Grappa
  • Patient participation
  • Patient research partners
  • Psoriasis
  • Psoriatic arthritis

ASJC Scopus subject areas

  • Rheumatology
  • Immunology
  • Immunology and Allergy

Cite this

De Wit, M., Campbell, W., Coates, L. C., Gladman, D. D., James, J., Lindsay, C. A., ... Goel, N. (2016). Let's talk about inclusion: A report on patient research partner involvement in the GRAPPA 2015 Annual Meeting. Journal of Rheumatology, 43(5), 970-973. https://doi.org/10.3899/jrheum.160117

Let's talk about inclusion : A report on patient research partner involvement in the GRAPPA 2015 Annual Meeting. / De Wit, Maarten; Campbell, Willemina; Coates, Laura C.; Gladman, Dafna D.; James, Jana; Lindsay, Chris A.; MacDonald, Roland; Moverley, Anna R.; Ogdie, Alexis; Orbai, Ana-Maria; O'Sullivan, Denis; Parkinson, Andrew; Steinkoenig, Ingrid; Tillett, William; Goel, Niti.

In: Journal of Rheumatology, Vol. 43, No. 5, 01.05.2016, p. 970-973.

Research output: Contribution to journalArticle

De Wit, M, Campbell, W, Coates, LC, Gladman, DD, James, J, Lindsay, CA, MacDonald, R, Moverley, AR, Ogdie, A, Orbai, A-M, O'Sullivan, D, Parkinson, A, Steinkoenig, I, Tillett, W & Goel, N 2016, 'Let's talk about inclusion: A report on patient research partner involvement in the GRAPPA 2015 Annual Meeting', Journal of Rheumatology, vol. 43, no. 5, pp. 970-973. https://doi.org/10.3899/jrheum.160117
De Wit, Maarten ; Campbell, Willemina ; Coates, Laura C. ; Gladman, Dafna D. ; James, Jana ; Lindsay, Chris A. ; MacDonald, Roland ; Moverley, Anna R. ; Ogdie, Alexis ; Orbai, Ana-Maria ; O'Sullivan, Denis ; Parkinson, Andrew ; Steinkoenig, Ingrid ; Tillett, William ; Goel, Niti. / Let's talk about inclusion : A report on patient research partner involvement in the GRAPPA 2015 Annual Meeting. In: Journal of Rheumatology. 2016 ; Vol. 43, No. 5. pp. 970-973.
@article{468b1e3a25b14a8b91a260746261e091,
title = "Let's talk about inclusion: A report on patient research partner involvement in the GRAPPA 2015 Annual Meeting",
abstract = "Members of the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) have worked since 2012 to include the patient perspective in their psoriatic arthritis (PsA) research as well as in their annual meetings. Herein, patient research partners (PRP) report the progress made in their experience at these GRAPPA meetings and discuss their perception of the challenges that remain in ensuring that patients have a voice in PsA outcome research.",
keywords = "Grappa, Patient participation, Patient research partners, Psoriasis, Psoriatic arthritis",
author = "{De Wit}, Maarten and Willemina Campbell and Coates, {Laura C.} and Gladman, {Dafna D.} and Jana James and Lindsay, {Chris A.} and Roland MacDonald and Moverley, {Anna R.} and Alexis Ogdie and Ana-Maria Orbai and Denis O'Sullivan and Andrew Parkinson and Ingrid Steinkoenig and William Tillett and Niti Goel",
year = "2016",
month = "5",
day = "1",
doi = "10.3899/jrheum.160117",
language = "English (US)",
volume = "43",
pages = "970--973",
journal = "Journal of Rheumatology",
issn = "0315-162X",
publisher = "Journal of Rheumatology",
number = "5",

}

TY - JOUR

T1 - Let's talk about inclusion

T2 - A report on patient research partner involvement in the GRAPPA 2015 Annual Meeting

AU - De Wit, Maarten

AU - Campbell, Willemina

AU - Coates, Laura C.

AU - Gladman, Dafna D.

AU - James, Jana

AU - Lindsay, Chris A.

AU - MacDonald, Roland

AU - Moverley, Anna R.

AU - Ogdie, Alexis

AU - Orbai, Ana-Maria

AU - O'Sullivan, Denis

AU - Parkinson, Andrew

AU - Steinkoenig, Ingrid

AU - Tillett, William

AU - Goel, Niti

PY - 2016/5/1

Y1 - 2016/5/1

N2 - Members of the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) have worked since 2012 to include the patient perspective in their psoriatic arthritis (PsA) research as well as in their annual meetings. Herein, patient research partners (PRP) report the progress made in their experience at these GRAPPA meetings and discuss their perception of the challenges that remain in ensuring that patients have a voice in PsA outcome research.

AB - Members of the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) have worked since 2012 to include the patient perspective in their psoriatic arthritis (PsA) research as well as in their annual meetings. Herein, patient research partners (PRP) report the progress made in their experience at these GRAPPA meetings and discuss their perception of the challenges that remain in ensuring that patients have a voice in PsA outcome research.

KW - Grappa

KW - Patient participation

KW - Patient research partners

KW - Psoriasis

KW - Psoriatic arthritis

UR - http://www.scopus.com/inward/record.url?scp=84969247812&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84969247812&partnerID=8YFLogxK

U2 - 10.3899/jrheum.160117

DO - 10.3899/jrheum.160117

M3 - Article

C2 - 27134272

AN - SCOPUS:84969247812

VL - 43

SP - 970

EP - 973

JO - Journal of Rheumatology

JF - Journal of Rheumatology

SN - 0315-162X

IS - 5

ER -