Abstract
In September 1986, the Baltimore Huntington's Disease Project initiated a voluntary program of presymptomatic genetic testing for Huntington's Disease (HD). Forty-seven persons at 50% risk for HD attended one of two educational sessions designed to educate them about the test. At the beginning and end of each session, subjects completed the Affect Adjective Checklist and a set of questions assessing knowledge about and attitude toward presymptomatic testing. As a result of attending an educational session, subjects learned more about presymptomatic testing, and their attitude towards finding out whether they had the marker for the HD gene became more favorable. Fewer people requested genetic testing than expected. Those who later chose to undergo genetic testing had a more favorable attitude at both the beginning and at the end of the educational session. The significance of these data for genetic counselors is discussed.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 431-438 |
| Number of pages | 8 |
| Journal | Clinical Genetics |
| Volume | 36 |
| Issue number | 6 |
| State | Published - 1989 |
Fingerprint
Keywords
- Genetic testing
- Huntington's disease
- Presymptomatic
ASJC Scopus subject areas
- Genetics(clinical)
- Genetics
Cite this
Knowledge, attitude, and the decision to be tested for Huntington's disease. / Quaid, K. A.; Brandt, Jason; Faden, Ruth R; Folstein, S. E.
In: Clinical Genetics, Vol. 36, No. 6, 1989, p. 431-438.Research output: Contribution to journal › Article
}
TY - JOUR
T1 - Knowledge, attitude, and the decision to be tested for Huntington's disease
AU - Quaid, K. A.
AU - Brandt, Jason
AU - Faden, Ruth R
AU - Folstein, S. E.
PY - 1989
Y1 - 1989
N2 - In September 1986, the Baltimore Huntington's Disease Project initiated a voluntary program of presymptomatic genetic testing for Huntington's Disease (HD). Forty-seven persons at 50% risk for HD attended one of two educational sessions designed to educate them about the test. At the beginning and end of each session, subjects completed the Affect Adjective Checklist and a set of questions assessing knowledge about and attitude toward presymptomatic testing. As a result of attending an educational session, subjects learned more about presymptomatic testing, and their attitude towards finding out whether they had the marker for the HD gene became more favorable. Fewer people requested genetic testing than expected. Those who later chose to undergo genetic testing had a more favorable attitude at both the beginning and at the end of the educational session. The significance of these data for genetic counselors is discussed.
AB - In September 1986, the Baltimore Huntington's Disease Project initiated a voluntary program of presymptomatic genetic testing for Huntington's Disease (HD). Forty-seven persons at 50% risk for HD attended one of two educational sessions designed to educate them about the test. At the beginning and end of each session, subjects completed the Affect Adjective Checklist and a set of questions assessing knowledge about and attitude toward presymptomatic testing. As a result of attending an educational session, subjects learned more about presymptomatic testing, and their attitude towards finding out whether they had the marker for the HD gene became more favorable. Fewer people requested genetic testing than expected. Those who later chose to undergo genetic testing had a more favorable attitude at both the beginning and at the end of the educational session. The significance of these data for genetic counselors is discussed.
KW - Genetic testing
KW - Huntington's disease
KW - Presymptomatic
UR - http://www.scopus.com/inward/record.url?scp=0024408245&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=0024408245&partnerID=8YFLogxK
M3 - Article
C2 - 2531636
AN - SCOPUS:0024408245
VL - 36
SP - 431
EP - 438
JO - Clinical Genetics
JF - Clinical Genetics
SN - 0009-9163
IS - 6
ER -