Abstract
Introduction For those living with Kawasaki disease and coronary artery aneurysms, little is known about the psychosocial burden faced by parents and their children. Methods Exploratory, descriptive, mixed-methods design examining survey and interview data about health-related uncertainty, intrusiveness, and self-efficacy. Results Parents' uncertainty was associated with missed diagnosis, higher income, and maternal education. Higher uncertainty scores among children were associated with absence of chest pain and lower number of echocardiograms. High intrusiveness scores among parents were associated with previous cardiac catheterization, use of anticoagulants, lower parent education and income, and missed diagnosis. High intrusiveness scores among children were associated with high paternal education. Children's total self-efficacy scores increased with chest pain and larger aneurysm size. Qualitative analysis showed two central themes: Psychosocial Struggle and Cautious Optimism. Discussion Negative illness impact is associated with a more intense medical experience and psychosocial limitations. Timely assessment and support are warranted to meet parents' and children's needs.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 459-469 |
| Number of pages | 11 |
| Journal | Journal of Pediatric Health Care |
| Volume | 31 |
| Issue number | 4 |
| DOIs | |
| State | Published - Jul 1 2017 |
| Externally published | Yes |
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Keywords
- anxiety
- children
- coronary artery aneurysms
- Kawasaki disease
- psychosocial functioning
- uncertainty
ASJC Scopus subject areas
- Pediatrics, Perinatology, and Child Health
Cite this
Kawasaki Disease With Coronary Artery Aneurysms : Psychosocial Impact on Parents and Children. / Chahal, Nita; Jelen, Ahlexxi; Rush, Janet; Manlhiot, Cedric; Boydell, Katherine M.; Sananes, Renee; McCrindle, Brian W.
In: Journal of Pediatric Health Care, Vol. 31, No. 4, 01.07.2017, p. 459-469.Research output: Contribution to journal › Article
}
TY - JOUR
T1 - Kawasaki Disease With Coronary Artery Aneurysms
T2 - Psychosocial Impact on Parents and Children
AU - Chahal, Nita
AU - Jelen, Ahlexxi
AU - Rush, Janet
AU - Manlhiot, Cedric
AU - Boydell, Katherine M.
AU - Sananes, Renee
AU - McCrindle, Brian W.
PY - 2017/7/1
Y1 - 2017/7/1
N2 - Introduction For those living with Kawasaki disease and coronary artery aneurysms, little is known about the psychosocial burden faced by parents and their children. Methods Exploratory, descriptive, mixed-methods design examining survey and interview data about health-related uncertainty, intrusiveness, and self-efficacy. Results Parents' uncertainty was associated with missed diagnosis, higher income, and maternal education. Higher uncertainty scores among children were associated with absence of chest pain and lower number of echocardiograms. High intrusiveness scores among parents were associated with previous cardiac catheterization, use of anticoagulants, lower parent education and income, and missed diagnosis. High intrusiveness scores among children were associated with high paternal education. Children's total self-efficacy scores increased with chest pain and larger aneurysm size. Qualitative analysis showed two central themes: Psychosocial Struggle and Cautious Optimism. Discussion Negative illness impact is associated with a more intense medical experience and psychosocial limitations. Timely assessment and support are warranted to meet parents' and children's needs.
AB - Introduction For those living with Kawasaki disease and coronary artery aneurysms, little is known about the psychosocial burden faced by parents and their children. Methods Exploratory, descriptive, mixed-methods design examining survey and interview data about health-related uncertainty, intrusiveness, and self-efficacy. Results Parents' uncertainty was associated with missed diagnosis, higher income, and maternal education. Higher uncertainty scores among children were associated with absence of chest pain and lower number of echocardiograms. High intrusiveness scores among parents were associated with previous cardiac catheterization, use of anticoagulants, lower parent education and income, and missed diagnosis. High intrusiveness scores among children were associated with high paternal education. Children's total self-efficacy scores increased with chest pain and larger aneurysm size. Qualitative analysis showed two central themes: Psychosocial Struggle and Cautious Optimism. Discussion Negative illness impact is associated with a more intense medical experience and psychosocial limitations. Timely assessment and support are warranted to meet parents' and children's needs.
KW - anxiety
KW - children
KW - coronary artery aneurysms
KW - Kawasaki disease
KW - psychosocial functioning
KW - uncertainty
UR - http://www.scopus.com/inward/record.url?scp=85008179001&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85008179001&partnerID=8YFLogxK
U2 - 10.1016/j.pedhc.2016.11.007
DO - 10.1016/j.pedhc.2016.11.007
M3 - Article
VL - 31
SP - 459
EP - 469
JO - Journal of Pediatric Health Care
JF - Journal of Pediatric Health Care
SN - 0891-5245
IS - 4
ER -