TY - JOUR
T1 - Informational needs during active surveillance for prostate cancer
T2 - A qualitative study
AU - Loeb, Stacy
AU - Curnyn, Caitlin
AU - Fagerlin, Angela
AU - Braithwaite, R. Scott
AU - Schwartz, Mark D.
AU - Lepor, Herbert
AU - Carter, H. Ballentine
AU - Ciprut, Shannon
AU - Sedlander, Erica
N1 - Funding Information:
Financial support for this study was provided by The Prostate Cancer Foundation, The Edward Blank and Sharon Cosloy-Blank Family Foundation, The Gertrude and Louis Feil Family, the New York State Department of Health (DOH01-C30697GG-3450000), The Laura and Isaac Perlmutter Cancer Center at NYU Langone Medical Center (P30CA016087), and the National Institutes of Health (Award Number K07CA178258). The content is solely the responsibility of the authors and does not represent the official views of the NIH.
Publisher Copyright:
© 2017 Elsevier B.V.
PY - 2018/2
Y1 - 2018/2
N2 - Objective: To understand the informational needs during active surveillance (AS) for prostate cancer from the perspectives of patients and providers. Methods: We conducted seven focus groups with 37 AS patients in two urban clinical settings, and 24 semi-structured interviews with a national sample of providers. Transcripts were analyzed using applied thematic analysis, and themes were organized using descriptive matrix analyses. Results: We identified six themes related to informational needs during AS: 1) more information on prostate cancer (biopsy features, prognosis), 2) more information on active surveillance (difference from watchful waiting, testing protocol), 3) more information on alternative management options (complementary medicine, lifestyle modification), 4) greater variety of resources (multiple formats, targeting different audiences), 5) more social support and interaction, and 6) verified integrity of information (trusted, multidisciplinary and secure). Conclusions: Patients and providers described numerous drawbacks to existing prostate cancer resources and a variety of unmet needs including information on prognosis, AS testing protocols, and lifestyle modification. They also expressed a need for different types of resources, including interaction and unbiased information. Practical implications: These results are useful to inform the design of future resources for men undergoing AS.
AB - Objective: To understand the informational needs during active surveillance (AS) for prostate cancer from the perspectives of patients and providers. Methods: We conducted seven focus groups with 37 AS patients in two urban clinical settings, and 24 semi-structured interviews with a national sample of providers. Transcripts were analyzed using applied thematic analysis, and themes were organized using descriptive matrix analyses. Results: We identified six themes related to informational needs during AS: 1) more information on prostate cancer (biopsy features, prognosis), 2) more information on active surveillance (difference from watchful waiting, testing protocol), 3) more information on alternative management options (complementary medicine, lifestyle modification), 4) greater variety of resources (multiple formats, targeting different audiences), 5) more social support and interaction, and 6) verified integrity of information (trusted, multidisciplinary and secure). Conclusions: Patients and providers described numerous drawbacks to existing prostate cancer resources and a variety of unmet needs including information on prognosis, AS testing protocols, and lifestyle modification. They also expressed a need for different types of resources, including interaction and unbiased information. Practical implications: These results are useful to inform the design of future resources for men undergoing AS.
KW - Active surveillance
KW - Digital media
KW - Informational needs
KW - Prostate cancer
KW - Qualitative research
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U2 - 10.1016/j.pec.2017.08.022
DO - 10.1016/j.pec.2017.08.022
M3 - Article
C2 - 28886974
AN - SCOPUS:85028749577
SN - 0738-3991
VL - 101
SP - 241
EP - 247
JO - Patient Education and Counseling
JF - Patient Education and Counseling
IS - 2
ER -