Information avoidance and information seeking among parents of children with ASD

Nachum Sicherman, Kiely Law, Paul H. Lipkin, George Loewenstein, Alison R. Marvin, Joseph D. Buxbaum

Research output: Contribution to journalArticlepeer-review

Abstract

We estimated the effects of information avoidance and information seeking among parents of children diagnosed with autism spectrum disorder (ASD) on age of diagnosis. An online survey was completed by 1,815 parents of children with ASD. Children of parents who self-reported that they had preferred ‘‘not to know,’’ reported diagnoses around 3 months later than other children. Children of parents who raised concerns that they perceived as having been dealt with adequately reported diagnoses about 4 months earlier, but the children of parents who reported raising concerns repeatedly and felt that those concerns were dealt with inadequately were diagnosed over a year later. These findings suggest that failure of educational and healthcare professionals, in either substituting for parents who avoid information, or supporting those who seek information, can significantly delay the age of diagnosis.

Original languageEnglish (US)
Pages (from-to)249-259
Number of pages11
JournalAmerican journal on intellectual and developmental disabilities
Volume126
Issue number3
DOIs
StatePublished - 2021

Keywords

  • Age of diagnosis
  • Autism
  • Autism spectrum disorder
  • Information avoidance

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Neuropsychology and Physiological Psychology
  • Developmental and Educational Psychology
  • Arts and Humanities (miscellaneous)
  • Clinical Neurology
  • Psychiatry and Mental health

Fingerprint Dive into the research topics of 'Information avoidance and information seeking among parents of children with ASD'. Together they form a unique fingerprint.

Cite this