Improving transition from pediatric to adult cystic fibrosis care: Lessons from a national survey of current practices

Suzanne Elizabeth McLaughlin, Marie Diener-West, Alka Indurkhya, Haya Rubin, Rebekah Heckmann, Michael Patrick Boyle

Research output: Contribution to journalArticle

Abstract

OBJECTIVES. More than 500 000 adolescents with special health care needs age into adulthood each year in the United States, and there is growing recognition of the need for support of their transition to adult-oriented health care. Because of improved survival, cystic fibrosis has experienced this increasing transition need, and cystic fibrosis policy leaders responded by mandating the transition of adults with cystic fibrosis to adult-focused cystic fibrosis care programs by 2000. The primary objective of this study was to characterize in detail recent transition practices at US cystic fibrosis programs, to identify areas for improvement and to serve as a model for other diseases. A secondary objective of this study was to develop and validate a survey for formal assessment of transition practices. METHODS. A 105-question survey on key aspects of transition was administered to cystic fibrosis care team members from all 195 US Cystic Fibrosis Care programs. Rates of adherence to recommended components of transition care were measured. RESULTS. A total of 448 surveys were obtained from 170 (87%) of 195 cystic fibrosis programs. Although transfer of care occurs at a median age of 19 years, initial discussion of transition does not occur until a median age of 17 years, limiting time to foster self-care skills. Only half of programs consistently perform a transition readiness assessment, 28% of centers offer visits focused on transition, and

Original languageEnglish (US)
JournalPediatrics
Volume121
Issue number5
DOIs
StatePublished - May 2008

Fingerprint

Cystic Fibrosis
Pediatrics
Delivery of Health Care
Surveys and Questionnaires
Self Care

Keywords

  • Adolescents with special health care needs
  • Cystic fibrosis
  • Health care transition

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health

Cite this

Improving transition from pediatric to adult cystic fibrosis care : Lessons from a national survey of current practices. / McLaughlin, Suzanne Elizabeth; Diener-West, Marie; Indurkhya, Alka; Rubin, Haya; Heckmann, Rebekah; Boyle, Michael Patrick.

In: Pediatrics, Vol. 121, No. 5, 05.2008.

Research output: Contribution to journalArticle

McLaughlin, Suzanne Elizabeth ; Diener-West, Marie ; Indurkhya, Alka ; Rubin, Haya ; Heckmann, Rebekah ; Boyle, Michael Patrick. / Improving transition from pediatric to adult cystic fibrosis care : Lessons from a national survey of current practices. In: Pediatrics. 2008 ; Vol. 121, No. 5.
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