TY - JOUR
T1 - Illness representations of chronic obstructive pulmonary disease (COPD) to inform health education strategies and research design-learning from rural Uganda
AU - GECo Study Investigators
AU - Nagourney, Emily M.
AU - Robertson, Nicole M.
AU - Rykiel, Natalie
AU - Siddharthan, Trishul
AU - Alupo, Patricia
AU - Encarnacion, Marysol
AU - Kirenga, Bruce J.
AU - Kalyesubula, Robert
AU - Quaderi, Shumonta A.
AU - Hurst, John R.
AU - Checkley, William
AU - Pollard, Suzanne L.
N1 - Publisher Copyright:
© The Author(s) 2020. Published by Oxford University Press. All rights reserved.
PY - 2020/8/1
Y1 - 2020/8/1
N2 - More than 90% of chronic obstructive pulmonary disease (COPD)-related deaths occur in low- and middle-income countries; however, few studies have examined the illness experiences of individuals living with and providing treatment for COPD in these settings. This study characterizes illness representations for COPD in Nakaseke, Uganda from the perspectives of health care providers, village health teams and community members (CMs) with COPD. We conducted 40 in-depth, semi-structured interviews (16 health care providers, 12 village health teams and 12 CMs, aged 25-80 years). Interviews were analyzed using inductive coding, and the Illness Representations Model guided our analysis. Stakeholder groups showed concordance in identifying causal mechanisms of COPD, but showed disagreement in reasons for care seeking behaviors and treatment preferences. CMs did not use a distinct label to differentiate COPD from other respiratory illnesses, and described both the physical and social consequences of COPD. Local representations can inform development of adapted educational and self-management tools for COPD.
AB - More than 90% of chronic obstructive pulmonary disease (COPD)-related deaths occur in low- and middle-income countries; however, few studies have examined the illness experiences of individuals living with and providing treatment for COPD in these settings. This study characterizes illness representations for COPD in Nakaseke, Uganda from the perspectives of health care providers, village health teams and community members (CMs) with COPD. We conducted 40 in-depth, semi-structured interviews (16 health care providers, 12 village health teams and 12 CMs, aged 25-80 years). Interviews were analyzed using inductive coding, and the Illness Representations Model guided our analysis. Stakeholder groups showed concordance in identifying causal mechanisms of COPD, but showed disagreement in reasons for care seeking behaviors and treatment preferences. CMs did not use a distinct label to differentiate COPD from other respiratory illnesses, and described both the physical and social consequences of COPD. Local representations can inform development of adapted educational and self-management tools for COPD.
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U2 - 10.1093/her/cyaa016
DO - 10.1093/her/cyaa016
M3 - Article
C2 - 32702133
AN - SCOPUS:85088527060
SN - 0268-1153
VL - 35
SP - 258
EP - 269
JO - Health education research
JF - Health education research
IS - 4
ER -