Identification of strategies to facilitate organ donation among african americans using the nominal group technique

Jayme E. Locke, Haiyan Qu, Richard Shewchuk, Roslyn B. Mannon, Robert Gaston, Dorry Segev, Elinor C. Mannon, Michelle Y. Martin

Research output: Contribution to journalArticle

Abstract

Background and objectives African Americans are disproportionately affected by ESRD, but few receive a living donor kidney transplant. Surveys assessing attitudes toward donation have shown that African Americans are less likely to express a willingness to donate their own organs. Studies aimed at understanding factors that may facilitate the willingness of African Americans to become organ donors are needed. Design, setting, participants, & measurements A novel formative research method was used (the nominal group technique) to identify and prioritize strategies for facilitating increases in organ donation among churchattending African Americans. Four nominal group technique panel interviewswere convened (three community and one clergy). Each community panel represented a distinct local church; the clergy panel represented five distinct faith-based denominations. Before nominal group technique interviews, participants completed a questionnaire that assessed willingness to become a donor; 28 African-American adults ($19 years old) participated in the study. Results In total, 66.7% of participants identified knowledge- or education-related strategies as most important strategies in facilitating willingness to become an organ donor, a view that was even more pronounced among clergy. Three of four nominal group technique panels rated a knowledge-based strategy as the most important and included strategies, such as information on donor involvement and donation-related risks; 29.6% of participants indicated that they disagreed with deceased donation, and 37%of participants disagreedwith living donation. Community participants’ reservations about becoming an organ donor were similar for living (38.1%) and deceased (33.4%) donation; in contrast, clergy participants were more likely to express reservations about living donation (33.3% versus 16.7%). Conclusions These data indicate a greater opposition to living donation comparedwith donation after one’s death among African Americans and suggest that improving knowledge about organ donation, particularly with regard to donor involvement and donation-related risks, may facilitate increases in organ donation. Existing educational campaigns may fall short of meeting information needs of African Americans.

Original languageEnglish (US)
Pages (from-to)286-293
Number of pages8
JournalClinical Journal of the American Society of Nephrology
Volume10
Issue number2
DOIs
StatePublished - 2015

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Tissue and Organ Procurement
African Americans
Clergy
Tissue Donors
Living Donors
Chronic Kidney Failure
Interviews
Transplants
Kidney
Education
Research

ASJC Scopus subject areas

  • Nephrology
  • Transplantation
  • Epidemiology
  • Critical Care and Intensive Care Medicine

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Identification of strategies to facilitate organ donation among african americans using the nominal group technique. / Locke, Jayme E.; Qu, Haiyan; Shewchuk, Richard; Mannon, Roslyn B.; Gaston, Robert; Segev, Dorry; Mannon, Elinor C.; Martin, Michelle Y.

In: Clinical Journal of the American Society of Nephrology, Vol. 10, No. 2, 2015, p. 286-293.

Research output: Contribution to journalArticle

Locke, Jayme E. ; Qu, Haiyan ; Shewchuk, Richard ; Mannon, Roslyn B. ; Gaston, Robert ; Segev, Dorry ; Mannon, Elinor C. ; Martin, Michelle Y. / Identification of strategies to facilitate organ donation among african americans using the nominal group technique. In: Clinical Journal of the American Society of Nephrology. 2015 ; Vol. 10, No. 2. pp. 286-293.
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abstract = "Background and objectives African Americans are disproportionately affected by ESRD, but few receive a living donor kidney transplant. Surveys assessing attitudes toward donation have shown that African Americans are less likely to express a willingness to donate their own organs. Studies aimed at understanding factors that may facilitate the willingness of African Americans to become organ donors are needed. Design, setting, participants, & measurements A novel formative research method was used (the nominal group technique) to identify and prioritize strategies for facilitating increases in organ donation among churchattending African Americans. Four nominal group technique panel interviewswere convened (three community and one clergy). Each community panel represented a distinct local church; the clergy panel represented five distinct faith-based denominations. Before nominal group technique interviews, participants completed a questionnaire that assessed willingness to become a donor; 28 African-American adults ($19 years old) participated in the study. Results In total, 66.7{\%} of participants identified knowledge- or education-related strategies as most important strategies in facilitating willingness to become an organ donor, a view that was even more pronounced among clergy. Three of four nominal group technique panels rated a knowledge-based strategy as the most important and included strategies, such as information on donor involvement and donation-related risks; 29.6{\%} of participants indicated that they disagreed with deceased donation, and 37{\%}of participants disagreedwith living donation. Community participants’ reservations about becoming an organ donor were similar for living (38.1{\%}) and deceased (33.4{\%}) donation; in contrast, clergy participants were more likely to express reservations about living donation (33.3{\%} versus 16.7{\%}). Conclusions These data indicate a greater opposition to living donation comparedwith donation after one’s death among African Americans and suggest that improving knowledge about organ donation, particularly with regard to donor involvement and donation-related risks, may facilitate increases in organ donation. Existing educational campaigns may fall short of meeting information needs of African Americans.",
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AB - Background and objectives African Americans are disproportionately affected by ESRD, but few receive a living donor kidney transplant. Surveys assessing attitudes toward donation have shown that African Americans are less likely to express a willingness to donate their own organs. Studies aimed at understanding factors that may facilitate the willingness of African Americans to become organ donors are needed. Design, setting, participants, & measurements A novel formative research method was used (the nominal group technique) to identify and prioritize strategies for facilitating increases in organ donation among churchattending African Americans. Four nominal group technique panel interviewswere convened (three community and one clergy). Each community panel represented a distinct local church; the clergy panel represented five distinct faith-based denominations. Before nominal group technique interviews, participants completed a questionnaire that assessed willingness to become a donor; 28 African-American adults ($19 years old) participated in the study. Results In total, 66.7% of participants identified knowledge- or education-related strategies as most important strategies in facilitating willingness to become an organ donor, a view that was even more pronounced among clergy. Three of four nominal group technique panels rated a knowledge-based strategy as the most important and included strategies, such as information on donor involvement and donation-related risks; 29.6% of participants indicated that they disagreed with deceased donation, and 37%of participants disagreedwith living donation. Community participants’ reservations about becoming an organ donor were similar for living (38.1%) and deceased (33.4%) donation; in contrast, clergy participants were more likely to express reservations about living donation (33.3% versus 16.7%). Conclusions These data indicate a greater opposition to living donation comparedwith donation after one’s death among African Americans and suggest that improving knowledge about organ donation, particularly with regard to donor involvement and donation-related risks, may facilitate increases in organ donation. Existing educational campaigns may fall short of meeting information needs of African Americans.

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