HIV Informal Caregiving: Emergent Conflict and Growth

Nancy R. Reynolds, Angelo A. Alonzo

Research output: Contribution to journalArticlepeer-review


Findings are reported from a prospective study of 20 persons on the experience of providing informal care to partners or family members with HIV syndrome. In-depth, focused interviews were completed. Data were initially coded using an inductive technique and thematically analyzed The informal care providers were found to engage in a variety of interacting, and often conflicting psychosocial and instrumental processes that occurred over three emergent phases: (a) transitions to care, (b) living the burden, and (c) facing the void. Although the care providers struggled with various sources of uncertainty and distress, when periods of equanimity were realized, they experienced a heightened sense of coherence and personal growth.

Original languageEnglish (US)
Pages (from-to)251-260
Number of pages10
JournalResearch in Nursing and Health
Issue number3
StatePublished - Jun 1998
Externally publishedYes


  • Informal caregiving
  • Stress

ASJC Scopus subject areas

  • Nursing(all)

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