Findings are reported from a prospective study of 20 persons on the experience of providing informal care to partners or family members with HIV syndrome. In-depth, focused interviews were completed. Data were initially coded using an inductive technique and thematically analyzed The informal care providers were found to engage in a variety of interacting, and often conflicting psychosocial and instrumental processes that occurred over three emergent phases: (a) transitions to care, (b) living the burden, and (c) facing the void. Although the care providers struggled with various sources of uncertainty and distress, when periods of equanimity were realized, they experienced a heightened sense of coherence and personal growth.
|Original language||English (US)|
|Number of pages||10|
|Journal||Research in Nursing and Health|
|State||Published - Jun 1998|
- Informal caregiving
ASJC Scopus subject areas