Health-related quality of life and psychosocial functioning in children with tourette syndrome: Parent-child agreement and comparison to healthy norms

Ana M. Gutierrez-Colina, Cyd K. Eaton, Jennifer L. Lee, Julia Lamotte, Ronald L. Blount

Research output: Contribution to journalArticlepeer-review

Abstract

This study aimed to evaluate the degree of agreement between parent proxy- and child self-report on measures of child psychosocial functioning and health-related quality of life in children with Tourette syndrome. Participants included 28 children with Tourette syndrome and their parents. All participants provided ratings of children's level of quality of life and psychosocial functioning. Results revealed strong, positive relationships between child self- and parent proxy-reports on all quality of life and psychosocial functioning domains. Parents perceived significantly higher levels of depression compared to their children, whereas children reported significantly lower Physical quality of life compared to their parents. Results suggest that assessment of quality of life and psychosocial functioning should include multiple reporters whenever feasible. Caution should be used when exclusively relying on parent proxy-reports of quality of life and psychosocial functioning, as these reports may not accurately reflect children's difficulties or perceptions of their functioning.

Original languageEnglish (US)
Pages (from-to)326-332
Number of pages7
JournalJournal of child neurology
Volume30
Issue number3
DOIs
StatePublished - Mar 26 2015
Externally publishedYes

Keywords

  • Tourette syndrome
  • health-related quality of life
  • parent-child agreement
  • psychosocial functioning

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Clinical Neurology

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