Health care experiences and perceived financial impact among families of children with an autism spectrum disorder

Benjamin Zablotsky; Luther G. Kalb; Brian Freedman; Roma Vasa; Elizabeth A. Stuart

doi:10.1176/appi.ps.201200552

Health care experiences and perceived financial impact among families of children with an autism spectrum disorder

Benjamin Zablotsky, Luther G. Kalb, Brian Freedman, Roma Vasa, Elizabeth A. Stuart

Research output: Contribution to journal › Article › peer-review

Abstract

OBJECTIVE: The authors compared the health care experiences of families raising a child with autism spectrum disorder (ASD), an intellectual disability disorder (IDD), or attention-deficit hyperactivity disorder (ADHD).

METHODS: Children with a current diagnosis of ASD (N=3,005), ADHD (N=9,662), or IDD (N=949) were identified in the 2009-2010 National Survey of Children With Special Health Care Needs. Weighted structural equation modeling was used to determine the association between family satisfaction with medical care, timeliness of care, and medical insurance coverage and the impact of the child's condition on the family's financial situation.

RESULTS: Families of children diagnosed as having ASD comorbid with either ADHD or IDD or comorbid with both conditions reported the highest levels of dissatisfaction across all health care quality variables and experienced the greatest impact on the family's financial situation.

CONCLUSIONS: The findings underscore the need for comprehensive and accessible health care services for children with ASD, particularly those with comorbid conditions.

Original language	English (US)
Pages (from-to)	395-398
Number of pages	4
Journal	Psychiatric Services
Volume	65
Issue number	3
DOIs	https://doi.org/10.1176/appi.ps.201200552
State	Published - Mar 1 2014
Externally published	Yes

ASJC Scopus subject areas

General Medicine

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title = "Health care experiences and perceived financial impact among families of children with an autism spectrum disorder",

abstract = "OBJECTIVE: The authors compared the health care experiences of families raising a child with autism spectrum disorder (ASD), an intellectual disability disorder (IDD), or attention-deficit hyperactivity disorder (ADHD).METHODS: Children with a current diagnosis of ASD (N=3,005), ADHD (N=9,662), or IDD (N=949) were identified in the 2009-2010 National Survey of Children With Special Health Care Needs. Weighted structural equation modeling was used to determine the association between family satisfaction with medical care, timeliness of care, and medical insurance coverage and the impact of the child's condition on the family's financial situation.RESULTS: Families of children diagnosed as having ASD comorbid with either ADHD or IDD or comorbid with both conditions reported the highest levels of dissatisfaction across all health care quality variables and experienced the greatest impact on the family's financial situation.CONCLUSIONS: The findings underscore the need for comprehensive and accessible health care services for children with ASD, particularly those with comorbid conditions.",

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doi = "10.1176/appi.ps.201200552",

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AU - Zablotsky, Benjamin

AU - Kalb, Luther G.

AU - Freedman, Brian

AU - Vasa, Roma

AU - Stuart, Elizabeth A.

PY - 2014/3/1

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N2 - OBJECTIVE: The authors compared the health care experiences of families raising a child with autism spectrum disorder (ASD), an intellectual disability disorder (IDD), or attention-deficit hyperactivity disorder (ADHD).METHODS: Children with a current diagnosis of ASD (N=3,005), ADHD (N=9,662), or IDD (N=949) were identified in the 2009-2010 National Survey of Children With Special Health Care Needs. Weighted structural equation modeling was used to determine the association between family satisfaction with medical care, timeliness of care, and medical insurance coverage and the impact of the child's condition on the family's financial situation.RESULTS: Families of children diagnosed as having ASD comorbid with either ADHD or IDD or comorbid with both conditions reported the highest levels of dissatisfaction across all health care quality variables and experienced the greatest impact on the family's financial situation.CONCLUSIONS: The findings underscore the need for comprehensive and accessible health care services for children with ASD, particularly those with comorbid conditions.

AB - OBJECTIVE: The authors compared the health care experiences of families raising a child with autism spectrum disorder (ASD), an intellectual disability disorder (IDD), or attention-deficit hyperactivity disorder (ADHD).METHODS: Children with a current diagnosis of ASD (N=3,005), ADHD (N=9,662), or IDD (N=949) were identified in the 2009-2010 National Survey of Children With Special Health Care Needs. Weighted structural equation modeling was used to determine the association between family satisfaction with medical care, timeliness of care, and medical insurance coverage and the impact of the child's condition on the family's financial situation.RESULTS: Families of children diagnosed as having ASD comorbid with either ADHD or IDD or comorbid with both conditions reported the highest levels of dissatisfaction across all health care quality variables and experienced the greatest impact on the family's financial situation.CONCLUSIONS: The findings underscore the need for comprehensive and accessible health care services for children with ASD, particularly those with comorbid conditions.

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Health care experiences and perceived financial impact among families of children with an autism spectrum disorder

Abstract

ASJC Scopus subject areas

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