Genetic testing and insurance

L. Andrews, B. B. Biesecker, N. Fost, L. G. Jackson, N. Kass, J. A. Lowden, T. H. Murray, J. Payne, P. R. Reilly, M. A. Rothstein

Research output: Contribution to journalArticlepeer-review

46 Scopus citations


The rapid expansion of opportunities for genetic testing has been accompanied by complex questions about the appropriate relationships between providers, patients, and insurers. Some of these questions involve large public-policy decisions, such as whether the government should guarantee access to health care for all citizens. Universal access to health care, without regard to past, present, or future risk of disease, could eliminate risk-oriented underwriting in health-care coverage. A positive response to that question will ameliorate other problems. Until universal access is reality, genetic testing and genetic diagnosis will raise important issues for the practicing geneticist. How much does a client need to know about insurance implications before consenting to a genetic test? Should patients be counseled to purchase insurance before being tested? Should genetic information be excluded from medical records before their release to insurance companies for routine reimbursements or underwriting? What are the ethical and legal responsibilities of the geneticist?

Original languageEnglish (US)
Pages (from-to)327-331
Number of pages5
JournalAmerican journal of human genetics
Issue number1
StatePublished - 1995

ASJC Scopus subject areas

  • Genetics
  • Genetics(clinical)


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