Genetic counselors' current use of personal health records-based family histories in genetic clinics and considerations for their future adoption

Chaney Widmer, Jonathan P. Deshazo, Joann N Bodurtha, John Quillin, Heather Creswick

Research output: Contribution to journalArticle

Abstract

Given the widespread adoption of electronic medical records and recent emergence of electronic family history tools, we examined genetic counselors' perspectives on the emerging technology of the personal health record (PHR)-based family history tool that links to an electronic medical record (EMR). Two-hundred thirty-three genetic counselors responded to an on-line survey eliciting current use of electronic family history (EFH) tools and familiarity with PHR-based family history tools. Additionally, after being shown a series of screen shots of a newly developed PHR-based family history tool based on the U.S. Surgeon General's My Family Health Portrait (United States Department of Health and Human Services 2009), participants were surveyed about the perceived usefulness, ease of use, and impact on current workflow that this kind of tool would have in their practices. Eighty-three percent reported that their institution has an EMR, yet only 35 % have a dedicated space for family history. Eighty-two percent reported that less than 5 % of their patients have a PHR, and only 16 % have worked with patients who have a PHR. Seventy-two percent or more agreed that a PHR-based family history tool would facilitate communication, increase accuracy of information, ensure consistency in recording information, increase focus on actual counseling, reduce repetitive questions, improve efficiency, and increase the legibility and clarity. Our findings suggest that participants were familiar with existing EFH tools, but that the majority did not use them in practice. Genetic counselors' adoption of such tools is limited due to non-existence of this kind of technology or inability to integrate it into their clinics. They are also strongly in favor of adopting a PHR-based family history tool in genetics clinics, but have practical concerns that must be addressed before the tool can be implemented.

Original languageEnglish (US)
Pages (from-to)384-392
Number of pages9
JournalJournal of Genetic Counseling
Volume22
Issue number3
DOIs
StatePublished - Jun 2013

Fingerprint

Personal Health Records
Electronic Health Records
United States Dept. of Health and Human Services
Technology
Counselors
Workflow
Family Health
Counseling
Communication
Efficiency

Keywords

  • Electronic family history tool
  • Electronic health record
  • Electronic medical record
  • Family history
  • Patient portal
  • Pedigree

ASJC Scopus subject areas

  • Genetics(clinical)
  • Medicine(all)

Cite this

Genetic counselors' current use of personal health records-based family histories in genetic clinics and considerations for their future adoption. / Widmer, Chaney; Deshazo, Jonathan P.; Bodurtha, Joann N; Quillin, John; Creswick, Heather.

In: Journal of Genetic Counseling, Vol. 22, No. 3, 06.2013, p. 384-392.

Research output: Contribution to journalArticle

@article{00bbc24f58a94f17b01ad7a2050f3640,
title = "Genetic counselors' current use of personal health records-based family histories in genetic clinics and considerations for their future adoption",
abstract = "Given the widespread adoption of electronic medical records and recent emergence of electronic family history tools, we examined genetic counselors' perspectives on the emerging technology of the personal health record (PHR)-based family history tool that links to an electronic medical record (EMR). Two-hundred thirty-three genetic counselors responded to an on-line survey eliciting current use of electronic family history (EFH) tools and familiarity with PHR-based family history tools. Additionally, after being shown a series of screen shots of a newly developed PHR-based family history tool based on the U.S. Surgeon General's My Family Health Portrait (United States Department of Health and Human Services 2009), participants were surveyed about the perceived usefulness, ease of use, and impact on current workflow that this kind of tool would have in their practices. Eighty-three percent reported that their institution has an EMR, yet only 35 {\%} have a dedicated space for family history. Eighty-two percent reported that less than 5 {\%} of their patients have a PHR, and only 16 {\%} have worked with patients who have a PHR. Seventy-two percent or more agreed that a PHR-based family history tool would facilitate communication, increase accuracy of information, ensure consistency in recording information, increase focus on actual counseling, reduce repetitive questions, improve efficiency, and increase the legibility and clarity. Our findings suggest that participants were familiar with existing EFH tools, but that the majority did not use them in practice. Genetic counselors' adoption of such tools is limited due to non-existence of this kind of technology or inability to integrate it into their clinics. They are also strongly in favor of adopting a PHR-based family history tool in genetics clinics, but have practical concerns that must be addressed before the tool can be implemented.",
keywords = "Electronic family history tool, Electronic health record, Electronic medical record, Family history, Patient portal, Pedigree",
author = "Chaney Widmer and Deshazo, {Jonathan P.} and Bodurtha, {Joann N} and John Quillin and Heather Creswick",
year = "2013",
month = "6",
doi = "10.1007/s10897-012-9557-z",
language = "English (US)",
volume = "22",
pages = "384--392",
journal = "Journal of Genetic Counseling",
issn = "1059-7700",
publisher = "Kluwer Academic/Human Sciences Press Inc.",
number = "3",

}

TY - JOUR

T1 - Genetic counselors' current use of personal health records-based family histories in genetic clinics and considerations for their future adoption

AU - Widmer, Chaney

AU - Deshazo, Jonathan P.

AU - Bodurtha, Joann N

AU - Quillin, John

AU - Creswick, Heather

PY - 2013/6

Y1 - 2013/6

N2 - Given the widespread adoption of electronic medical records and recent emergence of electronic family history tools, we examined genetic counselors' perspectives on the emerging technology of the personal health record (PHR)-based family history tool that links to an electronic medical record (EMR). Two-hundred thirty-three genetic counselors responded to an on-line survey eliciting current use of electronic family history (EFH) tools and familiarity with PHR-based family history tools. Additionally, after being shown a series of screen shots of a newly developed PHR-based family history tool based on the U.S. Surgeon General's My Family Health Portrait (United States Department of Health and Human Services 2009), participants were surveyed about the perceived usefulness, ease of use, and impact on current workflow that this kind of tool would have in their practices. Eighty-three percent reported that their institution has an EMR, yet only 35 % have a dedicated space for family history. Eighty-two percent reported that less than 5 % of their patients have a PHR, and only 16 % have worked with patients who have a PHR. Seventy-two percent or more agreed that a PHR-based family history tool would facilitate communication, increase accuracy of information, ensure consistency in recording information, increase focus on actual counseling, reduce repetitive questions, improve efficiency, and increase the legibility and clarity. Our findings suggest that participants were familiar with existing EFH tools, but that the majority did not use them in practice. Genetic counselors' adoption of such tools is limited due to non-existence of this kind of technology or inability to integrate it into their clinics. They are also strongly in favor of adopting a PHR-based family history tool in genetics clinics, but have practical concerns that must be addressed before the tool can be implemented.

AB - Given the widespread adoption of electronic medical records and recent emergence of electronic family history tools, we examined genetic counselors' perspectives on the emerging technology of the personal health record (PHR)-based family history tool that links to an electronic medical record (EMR). Two-hundred thirty-three genetic counselors responded to an on-line survey eliciting current use of electronic family history (EFH) tools and familiarity with PHR-based family history tools. Additionally, after being shown a series of screen shots of a newly developed PHR-based family history tool based on the U.S. Surgeon General's My Family Health Portrait (United States Department of Health and Human Services 2009), participants were surveyed about the perceived usefulness, ease of use, and impact on current workflow that this kind of tool would have in their practices. Eighty-three percent reported that their institution has an EMR, yet only 35 % have a dedicated space for family history. Eighty-two percent reported that less than 5 % of their patients have a PHR, and only 16 % have worked with patients who have a PHR. Seventy-two percent or more agreed that a PHR-based family history tool would facilitate communication, increase accuracy of information, ensure consistency in recording information, increase focus on actual counseling, reduce repetitive questions, improve efficiency, and increase the legibility and clarity. Our findings suggest that participants were familiar with existing EFH tools, but that the majority did not use them in practice. Genetic counselors' adoption of such tools is limited due to non-existence of this kind of technology or inability to integrate it into their clinics. They are also strongly in favor of adopting a PHR-based family history tool in genetics clinics, but have practical concerns that must be addressed before the tool can be implemented.

KW - Electronic family history tool

KW - Electronic health record

KW - Electronic medical record

KW - Family history

KW - Patient portal

KW - Pedigree

UR - http://www.scopus.com/inward/record.url?scp=84877923785&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84877923785&partnerID=8YFLogxK

U2 - 10.1007/s10897-012-9557-z

DO - 10.1007/s10897-012-9557-z

M3 - Article

VL - 22

SP - 384

EP - 392

JO - Journal of Genetic Counseling

JF - Journal of Genetic Counseling

SN - 1059-7700

IS - 3

ER -