TY - JOUR
T1 - From insiders' perspectives
T2 - Adjusting to caregiving for patients with left ventricular assist devices
AU - Marcuccilli, Linda
AU - Casida, Jesus M.
PY - 2011/6/1
Y1 - 2011/6/1
N2 - Context: Caregivers for patients with a long-term implantable left ventricular assist device have a very important role in helping patients maintain their health and well-being and attain an improved quality of life. Although the caregiving tasks, burdens, and challenges of family caregivers have been described in the literature, we know little about how caregivers adjust to or accommodate the new role in their lives. Objective: To explore and describe the lifestyle adjustments of caregivers for adults living with a left ventricular assist device as a bridge to heart transplant or destination therapy. Design: A hermeneutic phenomenology was used as a guide for interviews and analysis of the data. Participants: A purposive convenience sample of 5 women, aged 39 to 71 years, who had served as caregivers of a left ventricular assist device patient for at least 3 months. Setting: Recruitment and data collection (interviews) were conducted in an outpatient clinic for the mechanical circulatory support program of a large academic medical center in the Midwest. Results: Three main themes (caregiving: a "24/7" responsibility, coping strategies, and satisfaction) and 13 subthemes emerged from the data. Conclusions: Lifestyle adjustments with caregiving may become easier over time, and with effective use of coping strategies, caregivers accept their new caregiving role as part of life.
AB - Context: Caregivers for patients with a long-term implantable left ventricular assist device have a very important role in helping patients maintain their health and well-being and attain an improved quality of life. Although the caregiving tasks, burdens, and challenges of family caregivers have been described in the literature, we know little about how caregivers adjust to or accommodate the new role in their lives. Objective: To explore and describe the lifestyle adjustments of caregivers for adults living with a left ventricular assist device as a bridge to heart transplant or destination therapy. Design: A hermeneutic phenomenology was used as a guide for interviews and analysis of the data. Participants: A purposive convenience sample of 5 women, aged 39 to 71 years, who had served as caregivers of a left ventricular assist device patient for at least 3 months. Setting: Recruitment and data collection (interviews) were conducted in an outpatient clinic for the mechanical circulatory support program of a large academic medical center in the Midwest. Results: Three main themes (caregiving: a "24/7" responsibility, coping strategies, and satisfaction) and 13 subthemes emerged from the data. Conclusions: Lifestyle adjustments with caregiving may become easier over time, and with effective use of coping strategies, caregivers accept their new caregiving role as part of life.
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U2 - 10.7182/prtr.21.2.dq53164u1464u683
DO - 10.7182/prtr.21.2.dq53164u1464u683
M3 - Article
C2 - 21736243
AN - SCOPUS:79961205185
SN - 1526-9248
VL - 21
SP - 137
EP - 143
JO - Progress in Transplantation
JF - Progress in Transplantation
IS - 2
ER -