Fostering Effective Asthma Self-Management Transfer in High-Risk Children: Gaps and Opportunities for Family Engagement

Rachel H.F. Margolis, Melissa H. Bellin, Jaclyn R.Mac Farlane Bookman, Kathryn S. Collins, Mary Elizabeth Bollinger, Cassia Lewis-Land, Arlene M. Butz

Research output: Contribution to journalArticlepeer-review

Abstract

Introduction: The process of self-management knowledge, behavior, and skill development in children with asthma from families with low income is understudied. Method: Fifteen mothers of children with uncontrolled asthma participated in semistructured interviews exploring the transfer of asthma self-management responsibilities from parent to child. Team members performed thematic analysis of written transcripts. Results: All participants were all the biological mothers and were impoverished, with most (73%) reporting an annual family income of less than $30,000. Their children ranged from 5 to 15 years old, were African American (100%), and had uncontrolled asthma based on national guidelines. Themes showed that child asthma self-management is difficult to achieve, that the transfer of asthma responsibility from mother to child is variable, and that mothers overestimate their child's developmental capacities for independent asthma self-management and have poor understanding of what well-controlled asthma means. Discussion: Ongoing assessment and tailored guidance from health care providers are critical to support the pivotal role of mothers in their child's self-management development process.

Original languageEnglish (US)
Pages (from-to)684-693
Number of pages10
JournalJournal of Pediatric Health Care
Volume33
Issue number6
DOIs
StatePublished - Nov 1 2019

Keywords

  • Asthma
  • health beliefs
  • poverty
  • self-management

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health

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