Family needs and expectations

Valerie King, Amy Basken, Emily Johnson, Alison Miles

Research output: Chapter in Book/Report/Conference proceedingChapter

Abstract

This chapter provides an emphasis on cultivating the relationship with the family as an essential component of the care team for the child with congenital heart disease. The processes for engendering trust and for improving communication with families will serve as a mechanism to improve the abilities of most team members to provide outstanding care. Developing courage, a moral compass, compassion (for the self as a learner, as well as for the family as the involuntary recipient of a demanding life event), and willingness to connect to the family while applying knowledge and skill to care for their child is ultimately the art of the practice of medicine.

Original languageEnglish (US)
Title of host publicationCritical Heart Disease in Infants and Children
PublisherElsevier
Pages94-99.e1
ISBN (Electronic)9781455707607
ISBN (Print)9781455751006
DOIs
StatePublished - Jan 1 2018

Keywords

  • Anticipatory guidance
  • Family communication
  • Family support
  • Family-centered care
  • Resources

ASJC Scopus subject areas

  • Medicine(all)

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