Family caregivers

A qualitative study to better understand the quality-of-life concerns and needs of this population

Betty Ferrell, Kate Kravitz, Tami Borneman, Ellen Taratoot Friedmann

Research output: Contribution to journalArticle

Abstract

BACKGROUND: While providing physical, psychological, and spiritual care to their loved ones with cancer, family caregivers (FCGs) are physically and emotionally vulnerable to the tolls of caregiving. Patients and FCGs experience the uncertainty that comes with illness and treatment, its side effects, the lack of control, the emotional upheaval, the spiritual doubt, and the helplessness of advancing disease. OBJECTIVES: This study was conducted to better understand the quality-of-life needs of the FCG population, particularly those who encounter financial strain related to patients’ cancer and treatment. METHODS: This qualitative study of FCG concerns was conducted in association with a randomized trial of an FCG support intervention. Twenty FCGs of patients with solid tumor cancers were interviewed in person or via telephone for this study. The FCG version of the City of Hope quality-of-life tool, which consists of four domains of well-being (physical, psychological, social, spiritual), was applied to the content analysis of interviews. FINDINGS: Care for FCGs is needed across all quality-of-life domains.

Original languageEnglish (US)
Pages (from-to)286-294
Number of pages9
JournalClinical Journal of Oncology Nursing
Volume22
Issue number3
DOIs
StatePublished - Jun 1 2018
Externally publishedYes

Fingerprint

Caregivers
Quality of Life
Population
Neoplasms
Psychology
Telephone
Uncertainty
Interviews
Therapeutics

Keywords

  • Family caregivers
  • Financial concerns
  • Physical care
  • Psychological care
  • Self-care

ASJC Scopus subject areas

  • Oncology
  • Oncology(nursing)

Cite this

Family caregivers : A qualitative study to better understand the quality-of-life concerns and needs of this population. / Ferrell, Betty; Kravitz, Kate; Borneman, Tami; Friedmann, Ellen Taratoot.

In: Clinical Journal of Oncology Nursing, Vol. 22, No. 3, 01.06.2018, p. 286-294.

Research output: Contribution to journalArticle

Ferrell, Betty ; Kravitz, Kate ; Borneman, Tami ; Friedmann, Ellen Taratoot. / Family caregivers : A qualitative study to better understand the quality-of-life concerns and needs of this population. In: Clinical Journal of Oncology Nursing. 2018 ; Vol. 22, No. 3. pp. 286-294.
@article{39bdaa52c1cb486081b31d95ff933f01,
title = "Family caregivers: A qualitative study to better understand the quality-of-life concerns and needs of this population",
abstract = "BACKGROUND: While providing physical, psychological, and spiritual care to their loved ones with cancer, family caregivers (FCGs) are physically and emotionally vulnerable to the tolls of caregiving. Patients and FCGs experience the uncertainty that comes with illness and treatment, its side effects, the lack of control, the emotional upheaval, the spiritual doubt, and the helplessness of advancing disease. OBJECTIVES: This study was conducted to better understand the quality-of-life needs of the FCG population, particularly those who encounter financial strain related to patients’ cancer and treatment. METHODS: This qualitative study of FCG concerns was conducted in association with a randomized trial of an FCG support intervention. Twenty FCGs of patients with solid tumor cancers were interviewed in person or via telephone for this study. The FCG version of the City of Hope quality-of-life tool, which consists of four domains of well-being (physical, psychological, social, spiritual), was applied to the content analysis of interviews. FINDINGS: Care for FCGs is needed across all quality-of-life domains.",
keywords = "Family caregivers, Financial concerns, Physical care, Psychological care, Self-care",
author = "Betty Ferrell and Kate Kravitz and Tami Borneman and Friedmann, {Ellen Taratoot}",
year = "2018",
month = "6",
day = "1",
doi = "10.1188/18.CJON.286-294",
language = "English (US)",
volume = "22",
pages = "286--294",
journal = "Clinical Journal of Oncology Nursing",
issn = "1092-1095",
publisher = "Oncology Nursing Society",
number = "3",

}

TY - JOUR

T1 - Family caregivers

T2 - A qualitative study to better understand the quality-of-life concerns and needs of this population

AU - Ferrell, Betty

AU - Kravitz, Kate

AU - Borneman, Tami

AU - Friedmann, Ellen Taratoot

PY - 2018/6/1

Y1 - 2018/6/1

N2 - BACKGROUND: While providing physical, psychological, and spiritual care to their loved ones with cancer, family caregivers (FCGs) are physically and emotionally vulnerable to the tolls of caregiving. Patients and FCGs experience the uncertainty that comes with illness and treatment, its side effects, the lack of control, the emotional upheaval, the spiritual doubt, and the helplessness of advancing disease. OBJECTIVES: This study was conducted to better understand the quality-of-life needs of the FCG population, particularly those who encounter financial strain related to patients’ cancer and treatment. METHODS: This qualitative study of FCG concerns was conducted in association with a randomized trial of an FCG support intervention. Twenty FCGs of patients with solid tumor cancers were interviewed in person or via telephone for this study. The FCG version of the City of Hope quality-of-life tool, which consists of four domains of well-being (physical, psychological, social, spiritual), was applied to the content analysis of interviews. FINDINGS: Care for FCGs is needed across all quality-of-life domains.

AB - BACKGROUND: While providing physical, psychological, and spiritual care to their loved ones with cancer, family caregivers (FCGs) are physically and emotionally vulnerable to the tolls of caregiving. Patients and FCGs experience the uncertainty that comes with illness and treatment, its side effects, the lack of control, the emotional upheaval, the spiritual doubt, and the helplessness of advancing disease. OBJECTIVES: This study was conducted to better understand the quality-of-life needs of the FCG population, particularly those who encounter financial strain related to patients’ cancer and treatment. METHODS: This qualitative study of FCG concerns was conducted in association with a randomized trial of an FCG support intervention. Twenty FCGs of patients with solid tumor cancers were interviewed in person or via telephone for this study. The FCG version of the City of Hope quality-of-life tool, which consists of four domains of well-being (physical, psychological, social, spiritual), was applied to the content analysis of interviews. FINDINGS: Care for FCGs is needed across all quality-of-life domains.

KW - Family caregivers

KW - Financial concerns

KW - Physical care

KW - Psychological care

KW - Self-care

UR - http://www.scopus.com/inward/record.url?scp=85047440284&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85047440284&partnerID=8YFLogxK

U2 - 10.1188/18.CJON.286-294

DO - 10.1188/18.CJON.286-294

M3 - Article

VL - 22

SP - 286

EP - 294

JO - Clinical Journal of Oncology Nursing

JF - Clinical Journal of Oncology Nursing

SN - 1092-1095

IS - 3

ER -