Factors associated with adaptation to Klinefelter syndrome: The experience of adolescents and adults

Amy Turriff, Howard Levy, Barbara Biesecker

Research output: Contribution to journalArticle

Abstract

Objective: The purpose of this study was to understand the impact of living with Klinefelter syndrome (XXY) as an adolescent or an adult and to examine the factors that contribute to adaptation. Methods: Individuals (n (310) aged 14-75 years with self-reported XXY were recruited from online support networks to complete a self-administered survey. Perceived consequences, perceived severity, perceived stigma, and coping were measured and evaluated as correlates of adaptation. Results: The use of problem-focused coping strategies was positively correlated with adaptation (p

Original languageEnglish (US)
Pages (from-to)90-95
Number of pages6
JournalPatient Education and Counseling
Volume98
Issue number1
DOIs
StatePublished - Jan 1 2015

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Klinefelter Syndrome
Surveys and Questionnaires

Keywords

  • 47,XXY
  • Adaptation
  • Coping
  • Illness perceptions
  • Klinefelter syndrome
  • Sex chromosome aneuploidy

ASJC Scopus subject areas

  • Medicine(all)

Cite this

Factors associated with adaptation to Klinefelter syndrome : The experience of adolescents and adults. / Turriff, Amy; Levy, Howard; Biesecker, Barbara.

In: Patient Education and Counseling, Vol. 98, No. 1, 01.01.2015, p. 90-95.

Research output: Contribution to journalArticle

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