Facilitating comparative effectiveness research in cancer genomics: Evaluating stakeholder perceptions of the engagement process

Patricia A. Deverka, Danielle C. Lavallee, Priyanka J. Desai, Joanne Armstrong, Mark Gorman, Leah Hole-Curry, James Oleary, B. W. Ruffner, John Watkins, David L. Veenstra, Laurence H. Baker, Joseph M. Unger, Scott D. Ramsey

Research output: Contribution to journalArticle

Abstract

Aims: The Center for Comparative Effectiveness Research in Cancer Genomics completed a 2-year stakeholder-guided process for the prioritization of genomic tests for comparative effectiveness research studies. We sought to evaluate the effectiveness of engagement procedures in achieving project goals and to identify opportunities for future improvements. Materials & methods: The evaluation included an online questionnaire, one-on-one telephone interviews and facilitated discussion. Responses to the online questionnaire were tabulated for descriptive purposes, while transcripts from key informant interviews were analyzed using a directed content analysis approach. Results: A total of 11 out of 13 stakeholders completed both the online questionnaire and interview process, while nine participated in the facilitated discussion. Eighty-nine percent of questionnaire items received overall ratings of agree or strongly agree; 11% of responses were rated as neutral with the exception of a single rating of disagreement with an item regarding the clarity of how stakeholder input was incorporated into project decisions. Recommendations for future improvement included developing standard recruitment practices, role descriptions and processes for improved communication with clinical and comparative effectiveness research investigators. Conclusions: Evaluation of the stakeholder engagement process provided constructive feedback for future improvements and should be routinely conducted to ensure maximal effectiveness of stakeholder involvement.

Original languageEnglish (US)
Pages (from-to)359-370
Number of pages12
JournalJournal of Comparative Effectiveness Research
Volume1
Issue number4
DOIs
StatePublished - Jul 1 2012
Externally publishedYes

Fingerprint

Comparative Effectiveness Research
Genomics
Interviews
Neoplasms
Communication
Research Personnel
Surveys and Questionnaires

Keywords

  • cancer genomics
  • comparative effectiveness research
  • evaluation
  • qualitative research
  • research prioritization
  • stakeholder engagement
  • stakeholders

ASJC Scopus subject areas

  • Health Policy

Cite this

Facilitating comparative effectiveness research in cancer genomics : Evaluating stakeholder perceptions of the engagement process. / Deverka, Patricia A.; Lavallee, Danielle C.; Desai, Priyanka J.; Armstrong, Joanne; Gorman, Mark; Hole-Curry, Leah; Oleary, James; Ruffner, B. W.; Watkins, John; Veenstra, David L.; Baker, Laurence H.; Unger, Joseph M.; Ramsey, Scott D.

In: Journal of Comparative Effectiveness Research, Vol. 1, No. 4, 01.07.2012, p. 359-370.

Research output: Contribution to journalArticle

Deverka, PA, Lavallee, DC, Desai, PJ, Armstrong, J, Gorman, M, Hole-Curry, L, Oleary, J, Ruffner, BW, Watkins, J, Veenstra, DL, Baker, LH, Unger, JM & Ramsey, SD 2012, 'Facilitating comparative effectiveness research in cancer genomics: Evaluating stakeholder perceptions of the engagement process', Journal of Comparative Effectiveness Research, vol. 1, no. 4, pp. 359-370. https://doi.org/10.2217/cer.12.36
Deverka, Patricia A. ; Lavallee, Danielle C. ; Desai, Priyanka J. ; Armstrong, Joanne ; Gorman, Mark ; Hole-Curry, Leah ; Oleary, James ; Ruffner, B. W. ; Watkins, John ; Veenstra, David L. ; Baker, Laurence H. ; Unger, Joseph M. ; Ramsey, Scott D. / Facilitating comparative effectiveness research in cancer genomics : Evaluating stakeholder perceptions of the engagement process. In: Journal of Comparative Effectiveness Research. 2012 ; Vol. 1, No. 4. pp. 359-370.
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