Evaluation of an information booklet for caregivers of people with dementia: An Australian perspective

Esther Chang, Sally Easterbrook, Karen Hancock, Amanda Johnson, Patricia M Davidson

Research output: Contribution to journalArticle

Abstract

The need for improved communication around end-of-life issues has been identified in cancer care. However, caregivers assisting those with dementia have been given scant attention. This study investigated the application of a new dementia information booklet for family caregivers, accessing those that were both community-based and linked to a residential aged-care facility through the distribution of 672 information booklets. This occurred via 14 dementia advisory services and 48 residential aged-care facilities throughout New South Wales, Australia. A total of 233 carers (33%) completed the booklet questionnaire evaluation. The descriptive statistics indicated that most carers found the booklet useful and thought that the booklet should be freely available to them. Almost half of the carers said that they wanted to receive the information at the time of, or soon after, the diagnosis of dementia. Only a small group of respondents considered the information to be confronting. The reported anxiety was thought to be part of a larger issue of dementia education and dealing with loss and not specifically related to the booklet itself.

Original languageEnglish (US)
Pages (from-to)45-51
Number of pages7
JournalNursing and Health Sciences
Volume12
Issue number1
DOIs
StatePublished - Mar 2010
Externally publishedYes

Fingerprint

Pamphlets
Caregivers
Dementia
South Australia
New South Wales
Information Dissemination
Consultants
Anxiety
Communication
Education
Neoplasms

Keywords

  • Alzheimer's disease
  • Caregiver education
  • Dementia
  • Evaluation
  • Information needs
  • Palliative care

ASJC Scopus subject areas

  • Nursing(all)
  • Medicine(all)

Cite this

Evaluation of an information booklet for caregivers of people with dementia : An Australian perspective. / Chang, Esther; Easterbrook, Sally; Hancock, Karen; Johnson, Amanda; Davidson, Patricia M.

In: Nursing and Health Sciences, Vol. 12, No. 1, 03.2010, p. 45-51.

Research output: Contribution to journalArticle

Chang, Esther ; Easterbrook, Sally ; Hancock, Karen ; Johnson, Amanda ; Davidson, Patricia M. / Evaluation of an information booklet for caregivers of people with dementia : An Australian perspective. In: Nursing and Health Sciences. 2010 ; Vol. 12, No. 1. pp. 45-51.
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