Ethics Roundtable: How Much is Too Much?

Mariana F. Theodoro; Jacinda Hays; Mara DiBartolomeo; Brian Carter

doi:10.1177/10499091221088829

Ethics Roundtable: How Much is Too Much?

Mariana F. Theodoro, Jacinda Hays, Mara DiBartolomeo, Brian Carter

All Children's Hospital

Research output: Contribution to journal › Article › peer-review

Abstract

How should the medical team approach care for a very preterm infant with a significant painful and life-limiting condition when the parents wish to pursue all life-sustaining therapies? Here, we discuss a case of an infant born at 28 weeks’ gestation with a diagnosis of Carmi syndrome (junctional epidermolysis bullosa and pyloric atresia). While the medical team felt that a do-not-resuscitate order and redirection to comfort care were appropriate, the family held on to hope for recovery and wished to continue with full intensive care measures.

Original language	English (US)
Pages (from-to)	106-110
Number of pages	5
Journal	American Journal of Hospice and Palliative Medicine
Volume	40
Issue number	1
DOIs	https://doi.org/10.1177/10499091221088829
State	Published - Jan 2023

Keywords

Carmi syndrome
end-of-life
epidermolysis bullosa
ethics
life-limiting condition
palliative care

ASJC Scopus subject areas

General Medicine

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10.1177/10499091221088829

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Ethics Roundtable: How Much is Too Much?

Abstract

Keywords

ASJC Scopus subject areas

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