Ethics and community involvement in syntheses concerning American Indian, Alaska Native, or Native Hawaiian health: A systematic review

Matthew O. Gribble, Deana M.Around Him

Research output: Contribution to journalReview articlepeer-review

Abstract

Background: The objective of this research was to review reporting of ethical concerns and community involvement in peer-reviewed systematic reviews or meta-analyses concerning American Indian, Alaska Native, or Native Hawaiian (AI/AN/NH) health. Methods: Text words and indexed vocabulary terms were used to query PubMed, Embase, Cochrane Library, and the Native Health Database for systematic reviews or meta-analyses concerning AI/AN/NH health published in peer-reviewed journals, followed by a search through reference lists. Each article was abstracted by two independent reviewers; results were discussed until consensus was reached. Results: We identified 107 papers published from 1986 through 2012 that were primarily about AI/AN/NH health or presented findings separately for AI/AN/NH communities. Two reported seeking indigenous reviewer feedback; none reported seeking input from tribes and communities. Approximately 7% reported on institutional review board (IRB) approval of included studies, 5% reported on tribal approval, and 4% referenced the sovereignty of AI/AN tribes. Approximately 63% used evidence from more than one AI/AN/NH population study, and 28% discussed potential benefits to communities from the synthesis research. Conclusions: Reporting of ethics and community involvement are not prominent. Systematic reviews and meta-analyses making community-level inferences may pose risks to communities. Future systematic reviews and meta-analyses should consider ethical and participatory dimensions of research.

Original languageEnglish (US)
Pages (from-to)1-24
Number of pages24
JournalAJOB Empirical Bioethics
Volume5
Issue number2
DOIs
StatePublished - Jan 1 2014

Keywords

  • Alaska Native
  • American Indian
  • Indigenous
  • Native Hawaiian
  • Participatory research
  • Research ethics

ASJC Scopus subject areas

  • Health(social science)
  • Philosophy
  • Health Policy

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