Ethical issues confronting outcomes analysis and quality assurance

Constantine D. Mavroudis, Jeffrey P. Jacobs, Allison Siegel, Constantine Mavroudis

Research output: Chapter in Book/Report/Conference proceedingChapter

Abstract

The Society of Thoracic Surgeons Congenital Heart Surgery Database (STS-CHSD) has served as the primary, externally validated source for outcomes from its many participating centers. Because participation is voluntary and data are not publically reported, there exists a fundamental conflict with the overwhelming trend toward public reporting in both medicine and cardiac surgery. The ethical issues surrounding this conflict, as well as those involved in public reporting of complex congenital heart disease in general are described herein. The process by which adult cardiac surgery has come to initiate public reporting, while an important model for future directions in outcome reporting, does not adequately address the unique challenges that are faced by the reporting of congenital heart surgical outcomes. If these ethical issues are addressed and public reporting can be done in a responsible manner, then it should be undertaken by the leadership of physician-based groups such as the Society of Thoracic Surgeons.

Original languageEnglish (US)
Title of host publicationPediatric and Congenital Cardiac Care
Subtitle of host publicationVolume 1: Outcomes Analysis
PublisherSpringer-Verlag London Ltd
Pages295-303
Number of pages9
ISBN (Electronic)9781447165873
ISBN (Print)9781447165866
DOIs
StatePublished - Jan 1 2015
Externally publishedYes

Keywords

  • Congenital heart disease
  • Database
  • Public reporting

ASJC Scopus subject areas

  • Medicine(all)

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    Mavroudis, C. D., Jacobs, J. P., Siegel, A., & Mavroudis, C. (2015). Ethical issues confronting outcomes analysis and quality assurance. In Pediatric and Congenital Cardiac Care: Volume 1: Outcomes Analysis (pp. 295-303). Springer-Verlag London Ltd. https://doi.org/10.1007/978-1-4471-6587-3_23