Ethical Issues Around Pediatric Death: Navigating Consent, Assent, and Disagreement Regarding Life-Sustaining Medical Treatment

Silvana Barone, Yoram Unguru

Research output: Contribution to journalArticle

Abstract

Decisions regarding whether or not to pursue experimental therapies or life-sustaining medical treatment of children with life-limiting illness can be a significant source of distress and conflict for both families and health care providers. This article reviews the concepts of parental permission (consent), assent, and emerging capacity and how they relate to decision-making for minors with serious illness. Decision-making capacity for adolescents is discussed generally and in the context of emotionally charged situations pertaining to the end of life. Strategies for minimizing conflict in situations of disagreement between children and families are provided.

Original languageEnglish (US)
JournalChild and Adolescent Psychiatric Clinics of North America
DOIs
StateAccepted/In press - Jan 1 2018

Fingerprint

Ethics
Pediatrics
Decision Making
Parental Consent
Minors
Investigational Therapies
Family Health
Health Personnel
Therapeutics
Conflict (Psychology)

Keywords

  • Adolescents
  • Assent
  • Consent
  • Death
  • Decision-making
  • Life-sustaining medical treatment

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Psychiatry and Mental health

Cite this

@article{311154b682e74da8ab3be280b8a0eb62,
title = "Ethical Issues Around Pediatric Death: Navigating Consent, Assent, and Disagreement Regarding Life-Sustaining Medical Treatment",
abstract = "Decisions regarding whether or not to pursue experimental therapies or life-sustaining medical treatment of children with life-limiting illness can be a significant source of distress and conflict for both families and health care providers. This article reviews the concepts of parental permission (consent), assent, and emerging capacity and how they relate to decision-making for minors with serious illness. Decision-making capacity for adolescents is discussed generally and in the context of emotionally charged situations pertaining to the end of life. Strategies for minimizing conflict in situations of disagreement between children and families are provided.",
keywords = "Adolescents, Assent, Consent, Death, Decision-making, Life-sustaining medical treatment",
author = "Silvana Barone and Yoram Unguru",
year = "2018",
month = "1",
day = "1",
doi = "10.1016/j.chc.2018.05.009",
language = "English (US)",
journal = "Child and Adolescent Psychiatric Clinics of North America",
issn = "1056-4993",
publisher = "W.B. Saunders Ltd",

}

TY - JOUR

T1 - Ethical Issues Around Pediatric Death

T2 - Navigating Consent, Assent, and Disagreement Regarding Life-Sustaining Medical Treatment

AU - Barone, Silvana

AU - Unguru, Yoram

PY - 2018/1/1

Y1 - 2018/1/1

N2 - Decisions regarding whether or not to pursue experimental therapies or life-sustaining medical treatment of children with life-limiting illness can be a significant source of distress and conflict for both families and health care providers. This article reviews the concepts of parental permission (consent), assent, and emerging capacity and how they relate to decision-making for minors with serious illness. Decision-making capacity for adolescents is discussed generally and in the context of emotionally charged situations pertaining to the end of life. Strategies for minimizing conflict in situations of disagreement between children and families are provided.

AB - Decisions regarding whether or not to pursue experimental therapies or life-sustaining medical treatment of children with life-limiting illness can be a significant source of distress and conflict for both families and health care providers. This article reviews the concepts of parental permission (consent), assent, and emerging capacity and how they relate to decision-making for minors with serious illness. Decision-making capacity for adolescents is discussed generally and in the context of emotionally charged situations pertaining to the end of life. Strategies for minimizing conflict in situations of disagreement between children and families are provided.

KW - Adolescents

KW - Assent

KW - Consent

KW - Death

KW - Decision-making

KW - Life-sustaining medical treatment

UR - http://www.scopus.com/inward/record.url?scp=85050289995&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85050289995&partnerID=8YFLogxK

U2 - 10.1016/j.chc.2018.05.009

DO - 10.1016/j.chc.2018.05.009

M3 - Article

C2 - 30219216

AN - SCOPUS:85050289995

JO - Child and Adolescent Psychiatric Clinics of North America

JF - Child and Adolescent Psychiatric Clinics of North America

SN - 1056-4993

ER -