Ethical Issues Around Pediatric Death: Navigating Consent, Assent, and Disagreement Regarding Life-Sustaining Medical Treatment

Silvana Barone; Yoram Unguru

doi:10.1016/j.chc.2018.05.009

Ethical Issues Around Pediatric Death: Navigating Consent, Assent, and Disagreement Regarding Life-Sustaining Medical Treatment

Silvana Barone, Yoram Unguru

School of Medicine

Research output: Contribution to journal › Review article › peer-review

3 Scopus citations

Abstract

Decisions regarding whether or not to pursue experimental therapies or life-sustaining medical treatment of children with life-limiting illness can be a significant source of distress and conflict for both families and health care providers. This article reviews the concepts of parental permission (consent), assent, and emerging capacity and how they relate to decision-making for minors with serious illness. Decision-making capacity for adolescents is discussed generally and in the context of emotionally charged situations pertaining to the end of life. Strategies for minimizing conflict in situations of disagreement between children and families are provided.

Original language	English (US)
Pages (from-to)	539-550
Number of pages	12
Journal	Child and Adolescent Psychiatric Clinics of North America
Volume	27
Issue number	4
DOIs	https://doi.org/10.1016/j.chc.2018.05.009
State	Published - Oct 2018

Keywords

Adolescents
Assent
Consent
Death
Decision-making
Life-sustaining medical treatment

ASJC Scopus subject areas

Pediatrics, Perinatology, and Child Health
Psychiatry and Mental health

Access to Document

10.1016/j.chc.2018.05.009

Cite this

@article{311154b682e74da8ab3be280b8a0eb62,

title = "Ethical Issues Around Pediatric Death: Navigating Consent, Assent, and Disagreement Regarding Life-Sustaining Medical Treatment",

abstract = "Decisions regarding whether or not to pursue experimental therapies or life-sustaining medical treatment of children with life-limiting illness can be a significant source of distress and conflict for both families and health care providers. This article reviews the concepts of parental permission (consent), assent, and emerging capacity and how they relate to decision-making for minors with serious illness. Decision-making capacity for adolescents is discussed generally and in the context of emotionally charged situations pertaining to the end of life. Strategies for minimizing conflict in situations of disagreement between children and families are provided.",

keywords = "Adolescents, Assent, Consent, Death, Decision-making, Life-sustaining medical treatment",

author = "Silvana Barone and Yoram Unguru",

note = "Publisher Copyright: {\textcopyright} 2018 Elsevier Inc.",

year = "2018",

month = oct,

doi = "10.1016/j.chc.2018.05.009",

language = "English (US)",

volume = "27",

pages = "539--550",

journal = "Child and Adolescent Psychiatric Clinics of North America",

issn = "1056-4993",

publisher = "W.B. Saunders Ltd",

number = "4",

}

TY - JOUR

T1 - Ethical Issues Around Pediatric Death

T2 - Navigating Consent, Assent, and Disagreement Regarding Life-Sustaining Medical Treatment

AU - Barone, Silvana

AU - Unguru, Yoram

PY - 2018/10

Y1 - 2018/10

N2 - Decisions regarding whether or not to pursue experimental therapies or life-sustaining medical treatment of children with life-limiting illness can be a significant source of distress and conflict for both families and health care providers. This article reviews the concepts of parental permission (consent), assent, and emerging capacity and how they relate to decision-making for minors with serious illness. Decision-making capacity for adolescents is discussed generally and in the context of emotionally charged situations pertaining to the end of life. Strategies for minimizing conflict in situations of disagreement between children and families are provided.

AB - Decisions regarding whether or not to pursue experimental therapies or life-sustaining medical treatment of children with life-limiting illness can be a significant source of distress and conflict for both families and health care providers. This article reviews the concepts of parental permission (consent), assent, and emerging capacity and how they relate to decision-making for minors with serious illness. Decision-making capacity for adolescents is discussed generally and in the context of emotionally charged situations pertaining to the end of life. Strategies for minimizing conflict in situations of disagreement between children and families are provided.

KW - Adolescents

KW - Assent

KW - Consent

KW - Death

KW - Decision-making

KW - Life-sustaining medical treatment

UR - http://www.scopus.com/inward/record.url?scp=85050289995&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85050289995&partnerID=8YFLogxK

U2 - 10.1016/j.chc.2018.05.009

DO - 10.1016/j.chc.2018.05.009

M3 - Review article

C2 - 30219216

AN - SCOPUS:85050289995

SN - 1056-4993

VL - 27

SP - 539

EP - 550

JO - Child and Adolescent Psychiatric Clinics of North America

JF - Child and Adolescent Psychiatric Clinics of North America

IS - 4

ER -

Ethical Issues Around Pediatric Death: Navigating Consent, Assent, and Disagreement Regarding Life-Sustaining Medical Treatment

Abstract

Keywords

ASJC Scopus subject areas

Access to Document

Other files and links

Fingerprint

Cite this