TY - JOUR
T1 - Ethical goals of community consultation in research
AU - Dickert, Neal
AU - Sugarman, Jeremy
PY - 2005/7
Y1 - 2005/7
N2 - In response to the traditional emphasis on the rights, interests, and well-being of individual research subjects, there has been growing attention focused on the importance of involving communities in research development and approval. Community consultation is a particularly common method of involving communities. However, the fundamental ethical goals of community consultation have not been delineated, which makes it difficult for investigators, sponsors, and institutional review boards to design and evaluate consultation efforts. Community consultation must be tailored to the communities in which it is conducted, but the purposes of consultation-the ethical goals it is designed to achieve-should be universal. We propose 4 ethical goals that give investigators, sponsors, institutional review boards, and communities a framework for evaluating community consultation processes.
AB - In response to the traditional emphasis on the rights, interests, and well-being of individual research subjects, there has been growing attention focused on the importance of involving communities in research development and approval. Community consultation is a particularly common method of involving communities. However, the fundamental ethical goals of community consultation have not been delineated, which makes it difficult for investigators, sponsors, and institutional review boards to design and evaluate consultation efforts. Community consultation must be tailored to the communities in which it is conducted, but the purposes of consultation-the ethical goals it is designed to achieve-should be universal. We propose 4 ethical goals that give investigators, sponsors, institutional review boards, and communities a framework for evaluating community consultation processes.
UR - http://www.scopus.com/inward/record.url?scp=21144431906&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=21144431906&partnerID=8YFLogxK
U2 - 10.2105/AJPH.2004.058933
DO - 10.2105/AJPH.2004.058933
M3 - Review article
C2 - 15983268
AN - SCOPUS:21144431906
SN - 0090-0036
VL - 95
SP - 1123
EP - 1127
JO - American journal of public health
JF - American journal of public health
IS - 7
ER -