TY - JOUR
T1 - Ethical and Practical Challenges of the Communication and Behavioral Manifestations of Primary Progressive Aphasia
AU - Tippett, Donna C.
AU - Tippett, Donna C.
AU - Tippett, Donna C.
AU - Hillis, Argye E.
AU - Hillis, Argye E.
AU - Hillis, Argye E.
N1 - Funding Information:
This work was made possible by NIH grant R01DC011317 from NIDCD and NIA. We gratefully acknowledge this support.
Publisher Copyright:
© 2020 by Thieme Medical Publishers, Inc.
PY - 2020/6/1
Y1 - 2020/6/1
N2 - The communication and behavioral manifestations of primary progressive aphasia (PPA) present ethical and practical challenges for individuals with this clinical syndrome as well as for individuals who are involved closely in their care. In this article, cases representing all three PPA variants (logopenic variant, nonfluent agrammatic, semantic variant) are presented to illustrate commonly encountered situations in which self-determination is at risk in decisions about housing, driving, social interactions, finances, and treatment interventions. Potential approaches, including patient/family education, implementation of safeguards, redirection to meaningful activities, and protections against vulnerability in treatment decisions, are described to preserve autonomy in patients with this neurodegenerative clinical syndrome.
AB - The communication and behavioral manifestations of primary progressive aphasia (PPA) present ethical and practical challenges for individuals with this clinical syndrome as well as for individuals who are involved closely in their care. In this article, cases representing all three PPA variants (logopenic variant, nonfluent agrammatic, semantic variant) are presented to illustrate commonly encountered situations in which self-determination is at risk in decisions about housing, driving, social interactions, finances, and treatment interventions. Potential approaches, including patient/family education, implementation of safeguards, redirection to meaningful activities, and protections against vulnerability in treatment decisions, are described to preserve autonomy in patients with this neurodegenerative clinical syndrome.
KW - logopenic variant PPA
KW - nonfluent agrammatic PPA
KW - primary progressive aphasia
KW - semantic variant PPA
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U2 - 10.1055/s-0040-1710062
DO - 10.1055/s-0040-1710062
M3 - Article
C2 - 32585709
AN - SCOPUS:85087138148
SN - 0734-0478
VL - 41
SP - 249
EP - 256
JO - Seminars in Speech and Language
JF - Seminars in Speech and Language
IS - 3
ER -