Equitably improving outcomes for cancer survivors and supporting caregivers: A blueprint for care delivery, research, education, and policy

Catherine M. Alfano, Corinne R. Leach, Tenbroeck G. Smith, Kim D. Miller, Kassandra I. Alcaraz, Rachel S. Cannady, Richard C. Wender, Otis Brawley

Research output: Contribution to journalArticle

Abstract

Cancer care delivery is being shaped by growing numbers of cancer survivors coupled with provider shortages, rising costs of primary treatment and follow-up care, significant survivorship health disparities, increased reliance on informal caregivers, and the transition to value-based care. These factors create a compelling need to provide coordinated, comprehensive, personalized care for cancer survivors in ways that meet survivors’ and caregivers’ unique needs while minimizing the impact of provider shortages and controlling costs for health care systems, survivors, and families. The authors reviewed research identifying and addressing the needs of cancer survivors and caregivers and used this synthesis to create a set of critical priorities for care delivery, research, education, and policy to equitably improve survivor outcomes and support caregivers. Efforts are needed in 3 priority areas: 1) implementing routine assessment of survivors’ needs and functioning and caregivers’ needs; 2) facilitating personalized, tailored, information and referrals from diagnosis onward for both survivors and caregivers, shifting services from point of care to point of need wherever possible; and 3) disseminating and supporting the implementation of new care methods and interventions.

Original languageEnglish (US)
Pages (from-to)35-49
Number of pages15
JournalCA Cancer Journal for Clinicians
Volume69
Issue number1
DOIs
StatePublished - Jan 1 2019
Externally publishedYes

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Keywords

  • cancer survivors
  • disease management
  • evidence-based practice
  • health policy
  • survivorship

ASJC Scopus subject areas

  • Hematology
  • Oncology

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