Engaging patients with heart failure into the design of health system interventions: Impact on research methods

Robin P. Newhouse; Meg Johantgen; Sue A. Thomas; Nina M. Trocky; Cheryl Renee Dennison-Himmelfarb; Jooyoung Cheon; Wanda Miller; Tracy Gray; Robin Pruitt

doi:10.1016/j.gerinurse.2016.12.012

Engaging patients with heart failure into the design of health system interventions: Impact on research methods

Robin P. Newhouse, Meg Johantgen, Sue A. Thomas, Nina M. Trocky, Cheryl Renee Dennison-Himmelfarb, Jooyoung Cheon, Wanda Miller, Tracy Gray, Robin Pruitt

School of Medicine

Research output: Contribution to journal › Article

Abstract

The purpose of this study was to engage patients with heart failure (HF) to assess if changes are needed in a research study design, methods and outcomes when transferring interventions used in urban/community hospitals to rural hospital settings. A qualitative structured interview was conducted with eight patients with a diagnosis of HF admitted to two rural hospitals. Patients validated the study design, measures and outcomes, but identified one area that should be added to the study protocol, symptom experience. Results validated that the intervention, methods and outcomes for the planned study were important, but modifications to the study protocol resulted. Patient engagement in the conceptualization of research is essential to guide patient-centered studies.

Original language	English (US)
Journal	Geriatric Nursing
DOIs	https://doi.org/10.1016/j.gerinurse.2016.12.012
State	Accepted/In press - Apr 28 2015

Keywords

Heart failure
Patient engagement
Research design
Rural hospital

ASJC Scopus subject areas

Gerontology

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abstract = "The purpose of this study was to engage patients with heart failure (HF) to assess if changes are needed in a research study design, methods and outcomes when transferring interventions used in urban/community hospitals to rural hospital settings. A qualitative structured interview was conducted with eight patients with a diagnosis of HF admitted to two rural hospitals. Patients validated the study design, measures and outcomes, but identified one area that should be added to the study protocol, symptom experience. Results validated that the intervention, methods and outcomes for the planned study were important, but modifications to the study protocol resulted. Patient engagement in the conceptualization of research is essential to guide patient-centered studies.",

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AU - Dennison-Himmelfarb, Cheryl Renee

AU - Cheon, Jooyoung

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AU - Gray, Tracy

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