Enabling global clinical collaborations on identifiable patient data: The Minerva initiative

Christoffer Nellåker, Fowzan S. Alkuraya, Gareth Baynam, Raphael Bernier, Francois P. Bernier, Vanessa Boulanger, Michael Brudno, Han G. Brunner, Jill Clayton-Smith, Benjamin Cogné, Hugh J. Dawkins, Bert DeVries, Sofia Douzgou, Tracy Dudding, Evan E. Eichler, Michael Ferlaino, Karen Fieggen, Helen V. Firth, David R. FitzPatrick, Dylan GrationTudor Groza, Melissa A. Haendel, Nina Hallowell, Ada Hamosh, Jayne Hehir-Kwa, Marc Phillip Hitz, Mark Hughes, Usha Kini, Tjitske Kleefstra, R. Frank Kooy, Peter M. Krawitz, Sébastien Küry, Melissa Lees, Gholson J. Lyon, Stanislas Lyonnet, Julien Marcadier, Stephen Meyn, Veronika Moslerová, Juan M. Politei, Cathryn C. Poulton, F. Lucy Raymond, Margot Reijnders, Peter N. Robinson, Corrado Romano, Catherine M. Rose, David C. Sainsbury, Lyn Schofield, Vernon R. Sutton, Marek Turnovec, Anke Van Dijck, Hilde Van Esch, Andrew O. Wilkie

Research output: Contribution to journalComment/debate

Original languageEnglish (US)
Article number611
JournalFrontiers in Genetics
Volume10
Issue numberJUN
DOIs
StatePublished - 2019

Keywords

  • Consortium
  • Data protection
  • Data sharing
  • Facial features
  • Patient information
  • Phenotyping
  • Rare disease

ASJC Scopus subject areas

  • Molecular Medicine
  • Genetics
  • Genetics(clinical)

Cite this

Nellåker, C., Alkuraya, F. S., Baynam, G., Bernier, R., Bernier, F. P., Boulanger, V., Brudno, M., Brunner, H. G., Clayton-Smith, J., Cogné, B., Dawkins, H. J., DeVries, B., Douzgou, S., Dudding, T., Eichler, E. E., Ferlaino, M., Fieggen, K., Firth, H. V., FitzPatrick, D. R., ... Wilkie, A. O. (2019). Enabling global clinical collaborations on identifiable patient data: The Minerva initiative. Frontiers in Genetics, 10(JUN), [611]. https://doi.org/10.3389/fgene.2019.00611