Embedding caregiver support in community-based services for older adults

A multi-site randomized trial to test the Adult Day Service Plus Program (ADS Plus)

Laura N Gitlin, Katherine Marx, Daniel Scerpella, H. Dabelko-Schoeny, Keith A. Anderson, Jin Huang, L. Pizzi, Eric Jutkowitz, David L Roth, Joseph E. Gaugler

Research output: Contribution to journalArticle

Abstract

There are over five million people in the United States living with dementia. Most live at home and are cared for by family. These family caregivers often assume care responsibilities without education about the disease, skills training, or support, and in turn become at risk for depression, burden, and adverse health outcomes when compared to non-dementia caregivers. Despite over 200 caregiver interventions with proven benefits, many caregivers lack access to these programs. One approach to enhance access is to embed evidence-based caregiver support programs in existing community-based services for people with dementia such as adult day services (ADS). Here we describe the protocol for an embedded pragmatic trial designed to augment standard ADS known as ADS Plus. ADS Plus provides family caregivers with support via education, referrals, and problem-solving techniques over 12 months, and is delivered on-site by existing ADS staff. Embedding a program in ADS requires an understanding of outcomes and implementation processes in that specific context. Thus, we deploy a hybrid design involving a cluster randomized two-group trial to evaluate treatment effects on caregiver wellbeing, ADS utilization, as well as nursing home placement. We describe implementation practices in 30 to 50 geographically and racially/ethnically diverse participating sites. Clinical trial registration #: NCT02927821

Original languageEnglish (US)
Pages (from-to)97-108
Number of pages12
JournalContemporary Clinical Trials
Volume83
DOIs
StatePublished - Aug 1 2019

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Social Welfare
Caregivers
Dementia
Pragmatic Clinical Trials
Education
Training Support
Nursing Homes
Referral and Consultation
Clinical Trials
Depression
Health

Keywords

  • Activities
  • Dementia
  • Family caregiving
  • Neuropsychological behaviors
  • Occupational therapy
  • Psychosocial intervention

ASJC Scopus subject areas

  • Pharmacology (medical)

Cite this

Embedding caregiver support in community-based services for older adults : A multi-site randomized trial to test the Adult Day Service Plus Program (ADS Plus). / Gitlin, Laura N; Marx, Katherine; Scerpella, Daniel; Dabelko-Schoeny, H.; Anderson, Keith A.; Huang, Jin; Pizzi, L.; Jutkowitz, Eric; Roth, David L; Gaugler, Joseph E.

In: Contemporary Clinical Trials, Vol. 83, 01.08.2019, p. 97-108.

Research output: Contribution to journalArticle

Gitlin, Laura N ; Marx, Katherine ; Scerpella, Daniel ; Dabelko-Schoeny, H. ; Anderson, Keith A. ; Huang, Jin ; Pizzi, L. ; Jutkowitz, Eric ; Roth, David L ; Gaugler, Joseph E. / Embedding caregiver support in community-based services for older adults : A multi-site randomized trial to test the Adult Day Service Plus Program (ADS Plus). In: Contemporary Clinical Trials. 2019 ; Vol. 83. pp. 97-108.
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