TY - JOUR
T1 - Disease disclosure in individuals with cystic fibrosis
T2 - Association with psychosocial and health outcomes
AU - Borschuk, Adrienne P.
AU - Everhart, Robin S.
AU - Eakin, Michelle N.
AU - Rand-Giovannetti, Devin
AU - Borrelli, Belinda
AU - Riekert, Kristin A.
N1 - Publisher Copyright:
© 2016 European Cystic Fibrosis Society.
PY - 2016/9/1
Y1 - 2016/9/1
N2 - Background This study aimed to quantify cystic fibrosis (CF) disclosure and examine associations between disclosure and psychosocial and health outcomes. Methods Participants completed measures assessing disease disclosure and psychosocial outcomes. Data from chart reviews and pharmacy records were obtained. Results Participants (N = 128; ages 16–63) were more likely to disclose to romantic partners (97%) and close friends (94%) than to casual friends (79%), bosses (71%), or co-workers (53%). Participants reported more comfort discussing CF with and doing treatments in front of romantic partners and close friends than other groups. Disclosure was associated with higher social support, social functioning, and medication adherence self-efficacy. Lower lung-function was associated with disclosure to bosses and co-workers. Conclusions Clinicians should consider discussing disclosure with patients, as limited disclosure may have a negative impact on psychosocial outcomes.
AB - Background This study aimed to quantify cystic fibrosis (CF) disclosure and examine associations between disclosure and psychosocial and health outcomes. Methods Participants completed measures assessing disease disclosure and psychosocial outcomes. Data from chart reviews and pharmacy records were obtained. Results Participants (N = 128; ages 16–63) were more likely to disclose to romantic partners (97%) and close friends (94%) than to casual friends (79%), bosses (71%), or co-workers (53%). Participants reported more comfort discussing CF with and doing treatments in front of romantic partners and close friends than other groups. Disclosure was associated with higher social support, social functioning, and medication adherence self-efficacy. Lower lung-function was associated with disclosure to bosses and co-workers. Conclusions Clinicians should consider discussing disclosure with patients, as limited disclosure may have a negative impact on psychosocial outcomes.
KW - Cystic fibrosis
KW - Disclosure
KW - Medication adherence
KW - Self-efficacy
KW - Social support
UR - http://www.scopus.com/inward/record.url?scp=84961231148&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=84961231148&partnerID=8YFLogxK
U2 - 10.1016/j.jcf.2016.02.011
DO - 10.1016/j.jcf.2016.02.011
M3 - Article
C2 - 26996270
AN - SCOPUS:84961231148
SN - 1569-1993
VL - 15
SP - 696
EP - 702
JO - Journal of Cystic Fibrosis
JF - Journal of Cystic Fibrosis
IS - 5
ER -