Disclosure of information to patients in medical care

Ruth R Faden, Catherine Becker, Carol Lewis, John Freeman, Alan I. Faden

Research output: Contribution to journalArticle

Abstract

It is generally agreed that patients have a right to be adequately informed. However, little is known about the extent to which doctors and patients agree about information that should be disclosed. We studied what patients want to know, as contrasted with what physicians report actually disclosing, in a population of physicians who treat seizures and patients or parents of patients who have this disorder. In general, it was found that patients prefer far more detailed disclosures than physicians routinely offer and that the two groups have widely different beliefs about the consequences of detailed disclosures. Patients and parents preferred extensive disclosures, particularly regarding risks and alternative therapy. Physicians were likely to disclose only risks with a relatively high probability of occurrence and they provided little information about alternative therapies. Patients and parents were also much more likely than physicians to believe that the final decision concerning therapy should rest with the patient. The data suggest that a better empirical understanding of the consequences of detailed disclosures may help resolve differences of opinion regarding how much information should be provided to patients.

Original languageEnglish (US)
Pages (from-to)718-733
Number of pages16
JournalMedical Care
Volume19
Issue number7
StatePublished - 1981

Fingerprint

Disclosure
medical care
physician
parents
Physicians
seizure
Parents
Complementary Therapies
Seizures
Group

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health
  • Nursing(all)
  • Health(social science)
  • Health Professions(all)

Cite this

Faden, R. R., Becker, C., Lewis, C., Freeman, J., & Faden, A. I. (1981). Disclosure of information to patients in medical care. Medical Care, 19(7), 718-733.

Disclosure of information to patients in medical care. / Faden, Ruth R; Becker, Catherine; Lewis, Carol; Freeman, John; Faden, Alan I.

In: Medical Care, Vol. 19, No. 7, 1981, p. 718-733.

Research output: Contribution to journalArticle

Faden, RR, Becker, C, Lewis, C, Freeman, J & Faden, AI 1981, 'Disclosure of information to patients in medical care', Medical Care, vol. 19, no. 7, pp. 718-733.
Faden RR, Becker C, Lewis C, Freeman J, Faden AI. Disclosure of information to patients in medical care. Medical Care. 1981;19(7):718-733.
Faden, Ruth R ; Becker, Catherine ; Lewis, Carol ; Freeman, John ; Faden, Alan I. / Disclosure of information to patients in medical care. In: Medical Care. 1981 ; Vol. 19, No. 7. pp. 718-733.
@article{0862baa5d40e4bdda819878573a47f19,
title = "Disclosure of information to patients in medical care",
abstract = "It is generally agreed that patients have a right to be adequately informed. However, little is known about the extent to which doctors and patients agree about information that should be disclosed. We studied what patients want to know, as contrasted with what physicians report actually disclosing, in a population of physicians who treat seizures and patients or parents of patients who have this disorder. In general, it was found that patients prefer far more detailed disclosures than physicians routinely offer and that the two groups have widely different beliefs about the consequences of detailed disclosures. Patients and parents preferred extensive disclosures, particularly regarding risks and alternative therapy. Physicians were likely to disclose only risks with a relatively high probability of occurrence and they provided little information about alternative therapies. Patients and parents were also much more likely than physicians to believe that the final decision concerning therapy should rest with the patient. The data suggest that a better empirical understanding of the consequences of detailed disclosures may help resolve differences of opinion regarding how much information should be provided to patients.",
author = "Faden, {Ruth R} and Catherine Becker and Carol Lewis and John Freeman and Faden, {Alan I.}",
year = "1981",
language = "English (US)",
volume = "19",
pages = "718--733",
journal = "Medical Care",
issn = "0025-7079",
publisher = "Lippincott Williams and Wilkins",
number = "7",

}

TY - JOUR

T1 - Disclosure of information to patients in medical care

AU - Faden, Ruth R

AU - Becker, Catherine

AU - Lewis, Carol

AU - Freeman, John

AU - Faden, Alan I.

PY - 1981

Y1 - 1981

N2 - It is generally agreed that patients have a right to be adequately informed. However, little is known about the extent to which doctors and patients agree about information that should be disclosed. We studied what patients want to know, as contrasted with what physicians report actually disclosing, in a population of physicians who treat seizures and patients or parents of patients who have this disorder. In general, it was found that patients prefer far more detailed disclosures than physicians routinely offer and that the two groups have widely different beliefs about the consequences of detailed disclosures. Patients and parents preferred extensive disclosures, particularly regarding risks and alternative therapy. Physicians were likely to disclose only risks with a relatively high probability of occurrence and they provided little information about alternative therapies. Patients and parents were also much more likely than physicians to believe that the final decision concerning therapy should rest with the patient. The data suggest that a better empirical understanding of the consequences of detailed disclosures may help resolve differences of opinion regarding how much information should be provided to patients.

AB - It is generally agreed that patients have a right to be adequately informed. However, little is known about the extent to which doctors and patients agree about information that should be disclosed. We studied what patients want to know, as contrasted with what physicians report actually disclosing, in a population of physicians who treat seizures and patients or parents of patients who have this disorder. In general, it was found that patients prefer far more detailed disclosures than physicians routinely offer and that the two groups have widely different beliefs about the consequences of detailed disclosures. Patients and parents preferred extensive disclosures, particularly regarding risks and alternative therapy. Physicians were likely to disclose only risks with a relatively high probability of occurrence and they provided little information about alternative therapies. Patients and parents were also much more likely than physicians to believe that the final decision concerning therapy should rest with the patient. The data suggest that a better empirical understanding of the consequences of detailed disclosures may help resolve differences of opinion regarding how much information should be provided to patients.

UR - http://www.scopus.com/inward/record.url?scp=0019855992&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=0019855992&partnerID=8YFLogxK

M3 - Article

C2 - 7266120

AN - SCOPUS:0019855992

VL - 19

SP - 718

EP - 733

JO - Medical Care

JF - Medical Care

SN - 0025-7079

IS - 7

ER -