Digital Wings: Innovations in Transplant Readiness for Adolescent and Young Adult Transplant Recipients

Douglas B. Mogul, Emily M. Fredericks, Tammy M. Brady, Tamir Miloh, Kristin Riekert, Natalie Williams, Ryan Ford, Michael Fergusson, Beverly Kosmach-Park, Jon Hochstein, Gayathri Naraparaju, Macey L. Henderson, Dorry L. Segev, John F.P. Bridges

Research output: Contribution to journalArticle

Abstract

The Johns Hopkins University School of Medicine organized 2 multistakeholder symposia on February 2, 2018 and January 11, 2019 to address the problem of high graft failure in adolescent and young adult (AYA) solid organ transplant (SOT) recipients. Participants included international experts in transplantation, behavioral psychology, patient/parent advocacy, and technology. The objectives of the symposia were as follows: (1) to identify and discuss the barriers to and facilitators of effective transfer of care for AYA SOT recipients; (2) to actively explore strategies and digital solutions to promote their successful transfer of care; and (3) to develop meaningful partnerships for the successful development, evaluation, implementation, and dissemination of these digital solutions. Additionally, data were collected from 152 AYA SOT recipients demonstrating a substantial gap in how this population uses technologies for health-related activities, alongside an increased interest in an app to help them manage their transplant.

Original languageEnglish (US)
Pages (from-to)1970-1974
Number of pages5
JournalTransplantation
Volume103
Issue number10
DOIs
StatePublished - Oct 1 2019

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ASJC Scopus subject areas

  • Transplantation

Cite this

Mogul, D. B., Fredericks, E. M., Brady, T. M., Miloh, T., Riekert, K., Williams, N., Ford, R., Fergusson, M., Kosmach-Park, B., Hochstein, J., Naraparaju, G., Henderson, M. L., Segev, D. L., & Bridges, J. F. P. (2019). Digital Wings: Innovations in Transplant Readiness for Adolescent and Young Adult Transplant Recipients. Transplantation, 103(10), 1970-1974. https://doi.org/10.1097/TP.0000000000002749