Development of system-level performance measures for evaluation of models of care for inflammatory arthritis in Canada

Claire E H Barber, Deborah A. Marshall, Dianne P. Mosher, Pooneh Akhavan, Lori Tucker, Kristin Houghton, Michelle Batthish, Deborah M. Levy, Heinrike Schmeling, Janet Ellsworth, Heidi Tibollo, Sean Grant, Dmitry Khodyakov, Diane Lacaille, Vandana Ahluwalia, Henry Averns, Cheryl Barnabe, Claire Bombardier, Susan J. Bartlett, Sasha Bernatsky & 30 others Jennifer Burt, Debbie Feldman, Dafna D. Gladman, Beverly Greene, Boulos Haraoui, Nigil Haroon, Catherine Hofstetter, Adam M. Huber, Stephanie Keeling, Bianca Lang, Sharon A. Le Clercq, Theresa Lupton, Anne Lyddiatt, Rashmi Mandhane, Kimberly Morishita, Angelo Papachristos, Patricia Patrick, Dawn Richards, David Robinson, Natalie J. Shiff, Trudy Taylor, Regina Taylor-Gjevre, Glen T D Thomson, Carter Thorne, Karine Toupin-April, Peter Tugwell, Marie D. Westby, Jessica Widdifield, Linda Woodhouse, Michel Zummer

Research output: Contribution to journalArticle

Abstract

Objective. To develop system-level performance measures for evaluating the care of patients with inflammatory arthritis (IA), including rheumatoid arthritis (RA), psoriatic arthritis, ankylosing spondylitis, and juvenile idiopathic arthritis. Methods. This study involved several methodological phases. Over multiple rounds, various participants were asked to help define a set of candidate measurement themes. A systematic search was conducted of existing guidelines and measures. A set of 6 performance measures was defined and presented to 50 people, including patients with IA, rheumatologists, allied health professionals, and researchers using a 3-round, online, modified Delphi process. Participants rated the validity, feasibility, relevance, and likelihood of use of the measures. Measures with median ratings ≥ 7 for validity and relevance were included in the final set. Results. Six performance measures were developed evaluating the following aspects of care, with each measure being applied separately for each type of IA except where specified: waiting times for rheumatology consultation for patients with new onset IA, percentage of patients with IA seen by a rheumatologist, percentage of patients with IA seen in yearly followup by a rheumatologist, percentage of patients with RA treated with a disease-modifying antirheumatic drug (DMARD), time to DMARD therapy in RA, and number of rheumatologists per capita. Conclusion. The first set of system-level performance measures for IA care in Canada has been developed with broad input. The measures focus on timely access to care and initiation of appropriate treatment for patients with IA, and are likely to be of interest to other arthritis care systems internationally.

Original languageEnglish (US)
Pages (from-to)530-540
Number of pages11
JournalJournal of Rheumatology
Volume43
Issue number3
DOIs
StatePublished - Mar 1 2016
Externally publishedYes

Fingerprint

Arthritis
Canada
Rheumatoid Arthritis
Antirheumatic Agents
Allied Health Personnel
Psoriatic Arthritis
Juvenile Arthritis
Ankylosing Spondylitis
Rheumatology
Patient Care
Referral and Consultation
Research Personnel
Guidelines
Drug Therapy
Rheumatologists

Keywords

  • Ankylosing spondylitis
  • Juvenile idiopathic arthritis
  • Psoriatic arthritis
  • Quality indicators
  • Rheumatoid arthritis

ASJC Scopus subject areas

  • Rheumatology
  • Immunology
  • Immunology and Allergy

Cite this

Barber, C. E. H., Marshall, D. A., Mosher, D. P., Akhavan, P., Tucker, L., Houghton, K., ... Zummer, M. (2016). Development of system-level performance measures for evaluation of models of care for inflammatory arthritis in Canada. Journal of Rheumatology, 43(3), 530-540. https://doi.org/10.3899/jrheum.150839

Development of system-level performance measures for evaluation of models of care for inflammatory arthritis in Canada. / Barber, Claire E H; Marshall, Deborah A.; Mosher, Dianne P.; Akhavan, Pooneh; Tucker, Lori; Houghton, Kristin; Batthish, Michelle; Levy, Deborah M.; Schmeling, Heinrike; Ellsworth, Janet; Tibollo, Heidi; Grant, Sean; Khodyakov, Dmitry; Lacaille, Diane; Ahluwalia, Vandana; Averns, Henry; Barnabe, Cheryl; Bombardier, Claire; Bartlett, Susan J.; Bernatsky, Sasha; Burt, Jennifer; Feldman, Debbie; Gladman, Dafna D.; Greene, Beverly; Haraoui, Boulos; Haroon, Nigil; Hofstetter, Catherine; Huber, Adam M.; Keeling, Stephanie; Lang, Bianca; Le Clercq, Sharon A.; Lupton, Theresa; Lyddiatt, Anne; Mandhane, Rashmi; Morishita, Kimberly; Papachristos, Angelo; Patrick, Patricia; Richards, Dawn; Robinson, David; Shiff, Natalie J.; Taylor, Trudy; Taylor-Gjevre, Regina; Thomson, Glen T D; Thorne, Carter; Toupin-April, Karine; Tugwell, Peter; Westby, Marie D.; Widdifield, Jessica; Woodhouse, Linda; Zummer, Michel.

In: Journal of Rheumatology, Vol. 43, No. 3, 01.03.2016, p. 530-540.

Research output: Contribution to journalArticle

Barber, CEH, Marshall, DA, Mosher, DP, Akhavan, P, Tucker, L, Houghton, K, Batthish, M, Levy, DM, Schmeling, H, Ellsworth, J, Tibollo, H, Grant, S, Khodyakov, D, Lacaille, D, Ahluwalia, V, Averns, H, Barnabe, C, Bombardier, C, Bartlett, SJ, Bernatsky, S, Burt, J, Feldman, D, Gladman, DD, Greene, B, Haraoui, B, Haroon, N, Hofstetter, C, Huber, AM, Keeling, S, Lang, B, Le Clercq, SA, Lupton, T, Lyddiatt, A, Mandhane, R, Morishita, K, Papachristos, A, Patrick, P, Richards, D, Robinson, D, Shiff, NJ, Taylor, T, Taylor-Gjevre, R, Thomson, GTD, Thorne, C, Toupin-April, K, Tugwell, P, Westby, MD, Widdifield, J, Woodhouse, L & Zummer, M 2016, 'Development of system-level performance measures for evaluation of models of care for inflammatory arthritis in Canada', Journal of Rheumatology, vol. 43, no. 3, pp. 530-540. https://doi.org/10.3899/jrheum.150839
Barber, Claire E H ; Marshall, Deborah A. ; Mosher, Dianne P. ; Akhavan, Pooneh ; Tucker, Lori ; Houghton, Kristin ; Batthish, Michelle ; Levy, Deborah M. ; Schmeling, Heinrike ; Ellsworth, Janet ; Tibollo, Heidi ; Grant, Sean ; Khodyakov, Dmitry ; Lacaille, Diane ; Ahluwalia, Vandana ; Averns, Henry ; Barnabe, Cheryl ; Bombardier, Claire ; Bartlett, Susan J. ; Bernatsky, Sasha ; Burt, Jennifer ; Feldman, Debbie ; Gladman, Dafna D. ; Greene, Beverly ; Haraoui, Boulos ; Haroon, Nigil ; Hofstetter, Catherine ; Huber, Adam M. ; Keeling, Stephanie ; Lang, Bianca ; Le Clercq, Sharon A. ; Lupton, Theresa ; Lyddiatt, Anne ; Mandhane, Rashmi ; Morishita, Kimberly ; Papachristos, Angelo ; Patrick, Patricia ; Richards, Dawn ; Robinson, David ; Shiff, Natalie J. ; Taylor, Trudy ; Taylor-Gjevre, Regina ; Thomson, Glen T D ; Thorne, Carter ; Toupin-April, Karine ; Tugwell, Peter ; Westby, Marie D. ; Widdifield, Jessica ; Woodhouse, Linda ; Zummer, Michel. / Development of system-level performance measures for evaluation of models of care for inflammatory arthritis in Canada. In: Journal of Rheumatology. 2016 ; Vol. 43, No. 3. pp. 530-540.
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abstract = "Objective. To develop system-level performance measures for evaluating the care of patients with inflammatory arthritis (IA), including rheumatoid arthritis (RA), psoriatic arthritis, ankylosing spondylitis, and juvenile idiopathic arthritis. Methods. This study involved several methodological phases. Over multiple rounds, various participants were asked to help define a set of candidate measurement themes. A systematic search was conducted of existing guidelines and measures. A set of 6 performance measures was defined and presented to 50 people, including patients with IA, rheumatologists, allied health professionals, and researchers using a 3-round, online, modified Delphi process. Participants rated the validity, feasibility, relevance, and likelihood of use of the measures. Measures with median ratings ≥ 7 for validity and relevance were included in the final set. Results. Six performance measures were developed evaluating the following aspects of care, with each measure being applied separately for each type of IA except where specified: waiting times for rheumatology consultation for patients with new onset IA, percentage of patients with IA seen by a rheumatologist, percentage of patients with IA seen in yearly followup by a rheumatologist, percentage of patients with RA treated with a disease-modifying antirheumatic drug (DMARD), time to DMARD therapy in RA, and number of rheumatologists per capita. Conclusion. The first set of system-level performance measures for IA care in Canada has been developed with broad input. The measures focus on timely access to care and initiation of appropriate treatment for patients with IA, and are likely to be of interest to other arthritis care systems internationally.",
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AU - Barber, Claire E H

AU - Marshall, Deborah A.

AU - Mosher, Dianne P.

AU - Akhavan, Pooneh

AU - Tucker, Lori

AU - Houghton, Kristin

AU - Batthish, Michelle

AU - Levy, Deborah M.

AU - Schmeling, Heinrike

AU - Ellsworth, Janet

AU - Tibollo, Heidi

AU - Grant, Sean

AU - Khodyakov, Dmitry

AU - Lacaille, Diane

AU - Ahluwalia, Vandana

AU - Averns, Henry

AU - Barnabe, Cheryl

AU - Bombardier, Claire

AU - Bartlett, Susan J.

AU - Bernatsky, Sasha

AU - Burt, Jennifer

AU - Feldman, Debbie

AU - Gladman, Dafna D.

AU - Greene, Beverly

AU - Haraoui, Boulos

AU - Haroon, Nigil

AU - Hofstetter, Catherine

AU - Huber, Adam M.

AU - Keeling, Stephanie

AU - Lang, Bianca

AU - Le Clercq, Sharon A.

AU - Lupton, Theresa

AU - Lyddiatt, Anne

AU - Mandhane, Rashmi

AU - Morishita, Kimberly

AU - Papachristos, Angelo

AU - Patrick, Patricia

AU - Richards, Dawn

AU - Robinson, David

AU - Shiff, Natalie J.

AU - Taylor, Trudy

AU - Taylor-Gjevre, Regina

AU - Thomson, Glen T D

AU - Thorne, Carter

AU - Toupin-April, Karine

AU - Tugwell, Peter

AU - Westby, Marie D.

AU - Widdifield, Jessica

AU - Woodhouse, Linda

AU - Zummer, Michel

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KW - Ankylosing spondylitis

KW - Juvenile idiopathic arthritis

KW - Psoriatic arthritis

KW - Quality indicators

KW - Rheumatoid arthritis

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