Developing the Storyline for an Advance Care Planning Video for Surgery Patients: Patient-Centered Outcomes Research Engagement from Stakeholder Summit to State Fair

Rebecca A. Aslakson, Anne L.R. Schuster, Thomas J. Lynch, Matthew J Weiss, Lydia Gregg, Judith Miller, Sarina R. Isenberg, Norah L. Crossnohere, Alison M. Conca-Cheng, Angelo E. Volandes, Thomas J Smith, John F.P. Bridges

Research output: Contribution to journalArticle

Abstract

Background: Patient-centered outcomes research (PCOR) methods and social learning theory (SLT) require intensive interaction between researchers and stakeholders. Advance care planning (ACP) is valuable before major surgery, but a systematic review found no extant perioperative ACP tools. Consequently, PCOR methods and SLT can inform the development of an ACP educational video for patients and families preparing for major surgery. Objective: The objective is to develop and test acceptability of an ACP video storyline. Design: The design is a stakeholder-guided development of the ACP video storyline. Design-thinking methods explored and prioritized stakeholder perspectives. Patients and family members evaluated storyboards containing the proposed storyline. Setting/Subjects: The study was conducted at hospital outpatient surgical clinics, in-person stakeholder summit, and the 2014 Maryland State Fair. Measurements: Measurements are done through stakeholder engagement and deidentified survey. Results: Stakeholders evaluated and prioritized evidence from an environmental scan. A surgeon, family member, and palliative care physician team iteratively developed a script featuring 12 core themes and worked with a medical graphic designer to translate the script into storyboards. For 10 days, 359 attendees of the 2014 Maryland State Fair evaluated the storyboards and 87% noted that they would be "very comfortable" or "comfortable" seeing the storyboard before major surgery, 89% considered the storyboards "very helpful" or "helpful," and 89% would "definitely recommend" or "recommend" this story to others preparing for major surgery. Conclusions: Through an iterative process utilizing diverse PCOR engagement methods and informed by SLT, storyboards were developed for an ACP video. Field testing revealed the storyline to be highly meaningful for surgery patients and family members.

Original languageEnglish (US)
Pages (from-to)89-94
Number of pages6
JournalJournal of Palliative Medicine
Volume21
Issue number1
DOIs
StatePublished - Jan 1 2018

Keywords

  • advance care planning
  • palliative care for surgery patients
  • patient-centered outcomes research

ASJC Scopus subject areas

  • Nursing(all)
  • Anesthesiology and Pain Medicine

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    Aslakson, R. A., Schuster, A. L. R., Lynch, T. J., Weiss, M. J., Gregg, L., Miller, J., Isenberg, S. R., Crossnohere, N. L., Conca-Cheng, A. M., Volandes, A. E., Smith, T. J., & Bridges, J. F. P. (2018). Developing the Storyline for an Advance Care Planning Video for Surgery Patients: Patient-Centered Outcomes Research Engagement from Stakeholder Summit to State Fair. Journal of Palliative Medicine, 21(1), 89-94. https://doi.org/10.1089/jpm.2017.0106