TY - JOUR
T1 - Developing, testing, and sustaining rehabilitation interventions via participatory action research
AU - Ehde, Dawn M.
AU - Wegener, Stephen T.
AU - Williams, Rhonda M.
AU - Ephraim, Patti L.
AU - Stevenson, Jennifer E.
AU - Isenberg, Patricia J.
AU - MacKenzie, Ellen J.
N1 - Funding Information:
Supported by the Centers for Disease Control and Prevention (grant nos. R04/CCU322981 and R01DD000153 ) and the Department of Education, National Institute on Disability and Rehabilitation Research (grant nos. H133B080024 and H133B080025 ).
Funding Information:
Changes in the funding environment may promote integration of PAR and its activities into the rehabilitation research agenda. In addition to the National Institute on Disability and Rehabilitation Research's longstanding advocacy for PAR, other funding agencies, both private and public, have shown growing support for CBPR in recent years. For example, the National Institutes of Health has published more than 24 funding opportunity announcements on CBPR in the past decade and has established a CBPR scientific interest group to facilitate communication among federal agencies supporting CBPR. 23 The American Cancer Society recently published a request for applications on using CBPR to reduce cancer health disparities. 68 Although encouraging, these funding opportunities tend to focus on health problems other than those central to persons with disabilities. There is a need for funding opportunities to support research using PAR to develop, test, disseminate, and translate rehabilitation interventions and to support research on PAR itself. Within existing funding mechanisms, researchers are encouraged to incorporate PAR into grant proposals and advocate for funding to pay for PAR activities without diverting funds necessary to carry out the research design. Including outcomes relevant to policy makers, such as cost, may provide empirical support for future funding of PAR research. 36
Copyright:
Copyright 2019 Elsevier B.V., All rights reserved.
PY - 2013
Y1 - 2013
N2 - Few published intervention studies in the rehabilitation literature have included consumers in the research process other than as study participants. This lack of consumer involvement in intervention research may contribute to the challenges encountered developing, translating, disseminating, and sustaining evidence-based rehabilitation interventions in clinical practice. The overall objective of this article is to promote the integration of participatory action research (PAR) into rehabilitation intervention research as a mechanism for addressing these gaps. First, we outline essential components of a PAR model across 5 key phases of intervention research, specifically: agenda setting, methods, implementation, diffusion/dissemination, and sustainability. Second, we describe the use of PAR in rehabilitation intervention research within each of these phases by reviewing relevant literature and by providing an illustrative research example from a randomized controlled trial that integrated PAR throughout the research process. Finally, we conclude with a discussion of 5 specific recommendations for promoting the integration of PAR into rehabilitation intervention research.
AB - Few published intervention studies in the rehabilitation literature have included consumers in the research process other than as study participants. This lack of consumer involvement in intervention research may contribute to the challenges encountered developing, translating, disseminating, and sustaining evidence-based rehabilitation interventions in clinical practice. The overall objective of this article is to promote the integration of participatory action research (PAR) into rehabilitation intervention research as a mechanism for addressing these gaps. First, we outline essential components of a PAR model across 5 key phases of intervention research, specifically: agenda setting, methods, implementation, diffusion/dissemination, and sustainability. Second, we describe the use of PAR in rehabilitation intervention research within each of these phases by reviewing relevant literature and by providing an illustrative research example from a randomized controlled trial that integrated PAR throughout the research process. Finally, we conclude with a discussion of 5 specific recommendations for promoting the integration of PAR into rehabilitation intervention research.
KW - Clinical trials as topic
KW - Community-based participatory research
KW - Rehabilitation
KW - Research design
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U2 - 10.1016/j.apmr.2012.10.025
DO - 10.1016/j.apmr.2012.10.025
M3 - Comment/debate
C2 - 23260776
AN - SCOPUS:84871379873
VL - 94
SP - S30-S42
JO - Archives of Physical Medicine and Rehabilitation
JF - Archives of Physical Medicine and Rehabilitation
SN - 0003-9993
IS - 1 SUPPL.
ER -