Developing quality indicators for cancer end-of-life care: Proceedings from a national symposium

Hsien Seow, Claire Snyder, Lisa R. Shugarman, Richard A. Mularski, Jean S. Kutner, Karl A. Lorenz, Albert W Wu, Sydney E Dy

Research output: Contribution to journalArticle

Abstract

Quality indicators applicable to cancer end-of-life care exist, but have not been widely implemented. To advance this field, the authors worked with the Agency for Health Care Research and Quality and the National Cancer Institute to organize a national symposium to discuss key issues and future goals, based on a conceptual framework. Discussions focused on 8 key domains in end-of-life cancer care: pain; dyspnea; communication, care planning, and decision making; psychosocial care; communication about chemotherapy; depression; continuity, coordination, and care transitions; and spirituality and closure. Key themes included the need for clarity on definitions and key aspects of care within domains, the need to start implementing indicators in more developed domains, and the importance of high-quality symptom assessment and documentation of key processes. Key areas for future work include development of more outcome indicators, methods to better incorporate indicators and patient-reported outcomes into clinical processes of care, and coordination across domains and settings. Measuring the quality of end-of-life cancer care is essential to understanding how best to improve patient outcomes and care.

Original languageEnglish (US)
Pages (from-to)3820-3829
Number of pages10
JournalCancer
Volume115
Issue number17
DOIs
StatePublished - Sep 1 2009

Fingerprint

Terminal Care
Communication
Patient Transfer
Neoplasms
Spirituality
Continuity of Patient Care
Symptom Assessment
National Cancer Institute (U.S.)
Health Services Research
Documentation
Dyspnea
Decision Making
Patient Care
Quality of Life
Depression
Drug Therapy

Keywords

  • Care planning
  • Communication
  • Depression
  • Dyspnea
  • End-of-life care
  • Pain
  • Psychosocial care
  • Quality indicators
  • Spirituality
  • Symptom assessment

ASJC Scopus subject areas

  • Cancer Research
  • Oncology

Cite this

Developing quality indicators for cancer end-of-life care : Proceedings from a national symposium. / Seow, Hsien; Snyder, Claire; Shugarman, Lisa R.; Mularski, Richard A.; Kutner, Jean S.; Lorenz, Karl A.; Wu, Albert W; Dy, Sydney E.

In: Cancer, Vol. 115, No. 17, 01.09.2009, p. 3820-3829.

Research output: Contribution to journalArticle

Seow, Hsien ; Snyder, Claire ; Shugarman, Lisa R. ; Mularski, Richard A. ; Kutner, Jean S. ; Lorenz, Karl A. ; Wu, Albert W ; Dy, Sydney E. / Developing quality indicators for cancer end-of-life care : Proceedings from a national symposium. In: Cancer. 2009 ; Vol. 115, No. 17. pp. 3820-3829.
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