Developing a data infrastructure for a learning health system

The PORTAL network

Elizabeth A. McGlynn, Tracy A. Lieu, Mary L. Durham, Alan Bauck, Reesa Laws, Alan S. Go, Jersey Chen, Heather Spencer Feigelson, Douglas A. Corley, Deborah Rohm Young, Andrew F. Nelson, Arthur J. Davidson, Leo S. Morales, Michael G. Kahn

Research output: Contribution to journalArticle

Abstract

The Kaiser Permanente & Strategic Partners Patient Outcomes Research To Advance Learning (PORTAL) network engages four healthcare delivery systems (Kaiser Permanente, Group Health Cooperative, HealthPartners, and Denver Health) and their affiliated research centers to create a new national network infrastructure that builds on existing relationships among these institutions. PORTAL is enhancing its current capabilities by expanding the scope of the common data model, paying particular attention to incorporating patient-reported data more systematically, implementing new multi-site data governance procedures, and integrating the PCORnet PopMedNet platform across our research centers. PORTAL is partnering with clinical research and patient experts to create cohorts of patients with a common diagnosis (colorectal cancer), a rare diagnosis (adolescents and adults with severe congenital heart disease), and adults who are overweight or obese, including those with pre-diabetes or diabetes, to conduct large-scale observational comparative effectiveness research and pragmatic clinical trials across diverse clinical care settings.

Original languageEnglish (US)
Pages (from-to)596-601
Number of pages6
JournalJournal of the American Medical Informatics Association
Volume21
Issue number4
DOIs
StatePublished - 2014
Externally publishedYes

Fingerprint

Outcome Assessment (Health Care)
Learning
Health
Pragmatic Clinical Trials
Comparative Effectiveness Research
Research
Delivery of Health Care
Colorectal Neoplasms
Heart Diseases

ASJC Scopus subject areas

  • Health Informatics

Cite this

McGlynn, E. A., Lieu, T. A., Durham, M. L., Bauck, A., Laws, R., Go, A. S., ... Kahn, M. G. (2014). Developing a data infrastructure for a learning health system: The PORTAL network. Journal of the American Medical Informatics Association, 21(4), 596-601. https://doi.org/10.1136/amiajnl-2014-002746

Developing a data infrastructure for a learning health system : The PORTAL network. / McGlynn, Elizabeth A.; Lieu, Tracy A.; Durham, Mary L.; Bauck, Alan; Laws, Reesa; Go, Alan S.; Chen, Jersey; Feigelson, Heather Spencer; Corley, Douglas A.; Young, Deborah Rohm; Nelson, Andrew F.; Davidson, Arthur J.; Morales, Leo S.; Kahn, Michael G.

In: Journal of the American Medical Informatics Association, Vol. 21, No. 4, 2014, p. 596-601.

Research output: Contribution to journalArticle

McGlynn, EA, Lieu, TA, Durham, ML, Bauck, A, Laws, R, Go, AS, Chen, J, Feigelson, HS, Corley, DA, Young, DR, Nelson, AF, Davidson, AJ, Morales, LS & Kahn, MG 2014, 'Developing a data infrastructure for a learning health system: The PORTAL network', Journal of the American Medical Informatics Association, vol. 21, no. 4, pp. 596-601. https://doi.org/10.1136/amiajnl-2014-002746
McGlynn, Elizabeth A. ; Lieu, Tracy A. ; Durham, Mary L. ; Bauck, Alan ; Laws, Reesa ; Go, Alan S. ; Chen, Jersey ; Feigelson, Heather Spencer ; Corley, Douglas A. ; Young, Deborah Rohm ; Nelson, Andrew F. ; Davidson, Arthur J. ; Morales, Leo S. ; Kahn, Michael G. / Developing a data infrastructure for a learning health system : The PORTAL network. In: Journal of the American Medical Informatics Association. 2014 ; Vol. 21, No. 4. pp. 596-601.
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