Cystic fibrosis Foundation evidence-based guidelines for management of infants with cystic fibrosis

Drucy Borowitz, Karen A. Robinson, Margaret Rosenfeld, Stephanie D. Davis, Kathryn A. Sabadosa, Stephanie L. Spear, Suzanne H. Michel, Richard B. Parad, Terry B. White, Philip M. Farrell, Bruce C. Marshall, Frank J. Accurso

Research output: Contribution to journalReview article

Abstract

Newborn screening for cystic fibrosis (CF) offers the opportunity for early medical and nutritional intervention that can lead to improved outcomes. Management of the asymptomatic infant diagnosed with CF through newborn screening, prenatal diagnosis, or sibling screening is different from treatment of the symptomatically diagnosed individual. The focus of management is on maintaining health by preventing nutritional and respiratory complications. The CF Foundation convened a committee to develop recommendations based on a systematic review of the evidence and expert opinion. These guidelines encompass monitoring and treatment recommendations for infants diagnosed with CF and are intended to help guide families, primary care providers, and specialty care centers in the care of infants with CF.

Original languageEnglish (US)
Pages (from-to)S73-S93
JournalJournal of Pediatrics
Volume155
Issue number6 SUPPL.
DOIs
StatePublished - Dec 2009

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health

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    Borowitz, D., Robinson, K. A., Rosenfeld, M., Davis, S. D., Sabadosa, K. A., Spear, S. L., Michel, S. H., Parad, R. B., White, T. B., Farrell, P. M., Marshall, B. C., & Accurso, F. J. (2009). Cystic fibrosis Foundation evidence-based guidelines for management of infants with cystic fibrosis. Journal of Pediatrics, 155(6 SUPPL.), S73-S93. https://doi.org/10.1016/j.jpeds.2009.09.001