Abstract
The Cystic Fibrosis Foundation is a voluntary, nonprofit, health organization whose mission is "to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease." While substantial progress has been made, as evidenced by a marked increase in the median predicted age of survival, much work remains to be done. Ongoing medical programs and activities of the Cystic Fibrosis Foundation, which span basic science, drug discovery, drug development, clinical care, patient education, and advocacy, will be described in this article. The key role of respiratory therapists in the cystic fibrosis community will be highlighted.
Original language | English (US) |
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Pages (from-to) | 788-795 |
Number of pages | 8 |
Journal | Respiratory care |
Volume | 54 |
Issue number | 6 |
DOIs | |
State | Published - Jun 2009 |
Externally published | Yes |
Keywords
- Clinical trials
- Cystic fibrosis
- Drug discovery
- Health services accessibility
- Quality of health care
- Registries
- Respiratory therapy
ASJC Scopus subject areas
- Pulmonary and Respiratory Medicine
- Critical Care and Intensive Care Medicine