Cystic Fibrosis Foundation: Achieving the mission

Bruce C. Marshall, Chris M. Penland, Leslie Hazle, Melissa Ashlock, Diana Wetmore, Preston W. Campbell, Robert J. Beall

Research output: Contribution to journalArticlepeer-review

23 Scopus citations

Abstract

The Cystic Fibrosis Foundation is a voluntary, nonprofit, health organization whose mission is "to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease." While substantial progress has been made, as evidenced by a marked increase in the median predicted age of survival, much work remains to be done. Ongoing medical programs and activities of the Cystic Fibrosis Foundation, which span basic science, drug discovery, drug development, clinical care, patient education, and advocacy, will be described in this article. The key role of respiratory therapists in the cystic fibrosis community will be highlighted.

Original languageEnglish (US)
Pages (from-to)788-795
Number of pages8
JournalRespiratory care
Volume54
Issue number6
DOIs
StatePublished - Jun 2009
Externally publishedYes

Keywords

  • Clinical trials
  • Cystic fibrosis
  • Drug discovery
  • Health services accessibility
  • Quality of health care
  • Registries
  • Respiratory therapy

ASJC Scopus subject areas

  • Pulmonary and Respiratory Medicine
  • Critical Care and Intensive Care Medicine

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