Current status of the European association for cardio-thoracic surgery and the society of thoracic surgeons congenital heart surgery database

Jeffrey P. Jacobs, Marshall L Jacobs, Bohdan Maruszewski, François G. Lacour-Gayet, David Robinson Clarke, Christo I. Tchervenkov, J. William Gaynor, Thomas L. Spray, Giovanni Stellin, Martin J. Elliott, Tjark Ebels, Constantine Mavroudis, Bradley S. Allen, François G. Lacour-Gayet

Research output: Contribution to journalArticle

Abstract

Background. After utilizing separate congenital databases in the early 1990s, the Society of Thoracic Surgeons (STS) and the European Association for Cardio-Thoracic Surgery (EACTS) collaborated on several joint database initiatives. Methods. In 1998, the joint EACTS-STS International Congenital Heart Surgery Nomenclature and Database Project Committee was created and a common nomenclature and common core minimum database dataset were adopted and published by the STS and the EACTS. In 1999, the joint EACTS-STS Aristotle Committee was created and the Aristotle Score was adopted and published as a method to provide complexity adjustment for congenital heart surgery. Collaborative efforts involving the EACTS and STS are underway to develop mechanisms to verify data completeness and accuracy. Results. Since 1998, this nomenclature, database, and methodology of complexity adjustment have been used by both the STS and EACTS to analyze outcomes of over 40,000 patients. A huge amount of data have been generated which allow comparison of practice patterns and outcomes analysis between Europe and North America. The aggregate data from the first 5 years of data collection not only make for interesting comparison but also allow examination of regional difference in practice patterns. For example, in the EACTS, out of 4,273 neonates, 885 (20.7%) underwent arterial switch procedures and 297 (6.95%) underwent Norwood stage 1 procedures. In the STS, out of 3,988 neonates, 472 (11.8%) underwent arterial switch procedures and 575 (14.4%) underwent Norwood stage 1 procedures. Conclusions. This analysis of the EACTS-STS multi-institutional outcomes database confirms that in both Europe and North America, case complexity and mortality is highest among neonates, then infants, and then children. Regional differences in practice patterns are demonstrated, with the overall goal being the continued upgrade in the quality of surgery for congenital heart disease worldwide.

Original languageEnglish (US)
Pages (from-to)2278-2284
Number of pages7
JournalAnnals of Thoracic Surgery
Volume80
Issue number6
DOIs
StatePublished - Dec 2005
Externally publishedYes

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Thoracic Surgery
Thorax
Databases
Norwood Procedures
Terminology
Joints
Newborn Infant
North America
Surgeons
Heart Diseases
Mortality

ASJC Scopus subject areas

  • Cardiology and Cardiovascular Medicine
  • Surgery

Cite this

Current status of the European association for cardio-thoracic surgery and the society of thoracic surgeons congenital heart surgery database. / Jacobs, Jeffrey P.; Jacobs, Marshall L; Maruszewski, Bohdan; Lacour-Gayet, François G.; Clarke, David Robinson; Tchervenkov, Christo I.; Gaynor, J. William; Spray, Thomas L.; Stellin, Giovanni; Elliott, Martin J.; Ebels, Tjark; Mavroudis, Constantine; Allen, Bradley S.; Lacour-Gayet, François G.

In: Annals of Thoracic Surgery, Vol. 80, No. 6, 12.2005, p. 2278-2284.

Research output: Contribution to journalArticle

Jacobs, JP, Jacobs, ML, Maruszewski, B, Lacour-Gayet, FG, Clarke, DR, Tchervenkov, CI, Gaynor, JW, Spray, TL, Stellin, G, Elliott, MJ, Ebels, T, Mavroudis, C, Allen, BS & Lacour-Gayet, FG 2005, 'Current status of the European association for cardio-thoracic surgery and the society of thoracic surgeons congenital heart surgery database', Annals of Thoracic Surgery, vol. 80, no. 6, pp. 2278-2284. https://doi.org/10.1016/j.athoracsur.2005.05.107
Jacobs, Jeffrey P. ; Jacobs, Marshall L ; Maruszewski, Bohdan ; Lacour-Gayet, François G. ; Clarke, David Robinson ; Tchervenkov, Christo I. ; Gaynor, J. William ; Spray, Thomas L. ; Stellin, Giovanni ; Elliott, Martin J. ; Ebels, Tjark ; Mavroudis, Constantine ; Allen, Bradley S. ; Lacour-Gayet, François G. / Current status of the European association for cardio-thoracic surgery and the society of thoracic surgeons congenital heart surgery database. In: Annals of Thoracic Surgery. 2005 ; Vol. 80, No. 6. pp. 2278-2284.
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abstract = "Background. After utilizing separate congenital databases in the early 1990s, the Society of Thoracic Surgeons (STS) and the European Association for Cardio-Thoracic Surgery (EACTS) collaborated on several joint database initiatives. Methods. In 1998, the joint EACTS-STS International Congenital Heart Surgery Nomenclature and Database Project Committee was created and a common nomenclature and common core minimum database dataset were adopted and published by the STS and the EACTS. In 1999, the joint EACTS-STS Aristotle Committee was created and the Aristotle Score was adopted and published as a method to provide complexity adjustment for congenital heart surgery. Collaborative efforts involving the EACTS and STS are underway to develop mechanisms to verify data completeness and accuracy. Results. Since 1998, this nomenclature, database, and methodology of complexity adjustment have been used by both the STS and EACTS to analyze outcomes of over 40,000 patients. A huge amount of data have been generated which allow comparison of practice patterns and outcomes analysis between Europe and North America. The aggregate data from the first 5 years of data collection not only make for interesting comparison but also allow examination of regional difference in practice patterns. For example, in the EACTS, out of 4,273 neonates, 885 (20.7{\%}) underwent arterial switch procedures and 297 (6.95{\%}) underwent Norwood stage 1 procedures. In the STS, out of 3,988 neonates, 472 (11.8{\%}) underwent arterial switch procedures and 575 (14.4{\%}) underwent Norwood stage 1 procedures. Conclusions. This analysis of the EACTS-STS multi-institutional outcomes database confirms that in both Europe and North America, case complexity and mortality is highest among neonates, then infants, and then children. Regional differences in practice patterns are demonstrated, with the overall goal being the continued upgrade in the quality of surgery for congenital heart disease worldwide.",
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AU - Jacobs, Jeffrey P.

AU - Jacobs, Marshall L

AU - Maruszewski, Bohdan

AU - Lacour-Gayet, François G.

AU - Clarke, David Robinson

AU - Tchervenkov, Christo I.

AU - Gaynor, J. William

AU - Spray, Thomas L.

AU - Stellin, Giovanni

AU - Elliott, Martin J.

AU - Ebels, Tjark

AU - Mavroudis, Constantine

AU - Allen, Bradley S.

AU - Lacour-Gayet, François G.

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