Creating an advance-care-planning decision aid for high-risk surgery: A qualitative study

Anne L.R. Schuster, Rebecca A. Aslakson, John F.P. Bridges

Research output: Contribution to journalArticle

Abstract

Background: High-risk surgery patients may lose decision-making capacity as a result of surgical complications. Advance care planning prior to surgery may be beneficial, but remains controversial and is hindered by a lack of appropriate decision aids. This study sought to examine stakeholders' views on the appropriateness of using decision aids, in general, to support advance care planning among high-risk surgery populations and the design of such a decision aid. Methods. Key informants were recruited through purposive and snowball sampling. Semi-structured interviews were conducted by phone until data collected reached theoretical saturation. Key informants were asked to discuss their thoughts about advance care planning and interventions to support advance care planning, particularly for this population. Researchers took de-identified notes that were analyzed for emerging concordant, discordant, and recurrent themes using interpretative phenomenological analysis. Results: Key informants described the importance of initiating advance care planning preoperatively, despite potential challenges present in surgical settings. In general, decision aids were viewed as an appropriate approach to support advance care planning for this population. A recipe emerged from the data that outlines tools, ingredients, and tips for success that are needed to design an advance care planning decision aid for high-risk surgical settings. Conclusions: Stakeholders supported incorporating advance care planning in high-risk surgical settings and endorsed the appropriateness of using decision aids to do so. Findings will inform the next stages of developing the first advance care planning decision aid for high-risk surgery patients.

Original languageEnglish (US)
Article number32
JournalBMC Palliative Care
Volume13
Issue number1
DOIs
StatePublished - Jun 19 2014

Keywords

  • Advance care planning
  • Decision aids
  • Decision making
  • Palliative care
  • Preoperative care

ASJC Scopus subject areas

  • Medicine(all)

Fingerprint Dive into the research topics of 'Creating an advance-care-planning decision aid for high-risk surgery: A qualitative study'. Together they form a unique fingerprint.

  • Cite this