Consumer-mediated health information exchanges: The 2012 ACMI debate

James J. Cimino, Mark E. Frisse, John Halamka, Latanya Sweeney, William Yasnoff

Research output: Contribution to journalComment/debatepeer-review

Abstract

The American College of Medical Informatics (ACMI) sponsors periodic debates during the American Medical Informatics Fall Symposium to highlight important informatics issues of broad interest. In 2012, a panel debated the following topic: "Resolved: Health Information Exchange Organizations Should Shift Their Principal Focus to Consumer-Mediated Exchange in Order to Facilitate the Rapid Development of Effective, Scalable, and Sustainable Health Information Infrastructure." Those supporting the proposition emphasized the need for consumer-controlled community repositories of electronic health records (health record banks) to address privacy, stakeholder cooperation, scalability, and sustainability. Those opposing the proposition emphasized that the current healthcare environment is so complex that development of consumer control will take time and that even then, consumers may not be able to mediate their information effectively. While privately each discussant recognizes that there are many sides to this complex issue, each followed the debater's tradition of taking an extreme position in order emphasize some of the polarizing aspects in the short time allotted them. In preparing this summary, we sought to convey the substance and spirit of the debate in printed form. Transcripts of the actual debate were edited for clarity, and appropriate supporting citations were added for the further edification of the reader.

Original languageEnglish (US)
Pages (from-to)5-15
Number of pages11
JournalJournal of Biomedical Informatics
Volume48
DOIs
StatePublished - 2014
Externally publishedYes

Keywords

  • Health information exchange
  • Personal health record

ASJC Scopus subject areas

  • Computer Science Applications
  • Health Informatics
  • Medicine(all)

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