Conceptual and methodological advances in child-reported outcomes measurement

Katherine B. Bevans, Anne W. Riley, Jeanhee Moon, Christopher B. Forrest

Research output: Contribution to journalReview articlepeer-review

Abstract

Increasingly, clinical, pharmaceutical and translational research studies use patient-reported outcomes as primary and secondary end points. Obtaining this type of information from children themselves is now possible, but effective assessment requires developmentally sensitive conceptual models of child health and an appreciation for the rapid change in childrens cognitive capacities. To overcome these barriers, outcomes researchers have capitalized on innovations in modern measurement theory, qualitative methods for instrument development and new computerized technologies to create reliable and valid methods for obtaining self-reported health data among 8-17-year-old children. This article provides a developmentally focused framework for selecting child-report health assessment instruments. Several generic health-related quality of life instruments and the assessment tools developed by the NIH-sponsored Patient-Reported Outcome Measurement Information System network are discussed to exemplify advances in the measurement of childrens self-reported health, illness, wellbeing and quality of life.

Original languageEnglish (US)
Pages (from-to)385-396
Number of pages12
JournalExpert Review of Pharmacoeconomics and Outcomes Research
Volume10
Issue number4
DOIs
StatePublished - Aug 2010

Keywords

  • child
  • child health
  • classical test theory
  • development
  • item response
  • parent report
  • proxy report
  • psychometric
  • self-report
  • subjective well-being
  • theory

ASJC Scopus subject areas

  • Health Policy
  • Pharmacology (medical)

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