Comparative effectiveness studies examining patient-reported outcomes among children with cleft lip and/or palate: A systematic review

Kavitha Ranganathan, Christian J. Vercler, Seth A. Warschausky, Mark P. MacEachern, Steven R. Buchman, Jennifer F. Waljee

Research output: Contribution to journalArticle

Abstract

Background: Health care policy makers are increasingly encouraging comparative effectiveness research. Little is known regarding comparative studies among children with cleft lip and/or palate. Cleft lip and/or palate profoundly influences self-perception and social functioning, and patient-reported outcomes provide a unique perspective on the success of reconstruction. The purpose of this study was to systematically review the literature regarding patient-reported outcomes among patients with cleft lip and/or palate. Methods: The authors reviewed articles from MEDLINE, Embase, and PsycInfo that examined the use of patient-reported outcome instruments for cleft lip and/or palate. Studies of patients with cleft lip and/or palate across any age that described the use of patient-completed measures in patient and control populations were included. A research librarian confirmed the search, and two independent, blinded reviewers performed full-text review. Results: The authors identified 1979 articles and selected 30 for inclusion. Forty-two different assessment tools were used to analyze factors such as selfesteem, behavior, and social support. The Strengths and Difficulties Questionnaire was most commonly used (n = 7), followed by the Childhood Experience Questionnaire (n = 5), and the Satisfaction with Appearance survey (n = 4). Barriers to analysis included lack of standardization of survey administration, effect of publication bias, and variations in patient populations between individual studies. Conclusions: Comparative studies of patient-reported outcomes among patients with cleft lip and/or palate are infrequent. Many instruments exist to measure patient-reported outcomes in this population, but no specific standard exists. Identifying efficient and targeted forms of instrument selection and administration will enhance comparative studies among children with cleft lip and/or palate.

Original languageEnglish (US)
Pages (from-to)198-211
Number of pages14
JournalPlastic and reconstructive surgery
Volume135
Issue number1
DOIs
StatePublished - Jan 1 2015
Externally publishedYes

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Cleft Lip
Cleft Palate
Comparative Effectiveness Research
Population
Librarians
Publication Bias
Health Policy
Patient Reported Outcome Measures
Administrative Personnel
Self Concept
MEDLINE
Social Support
Statistical Factor Analysis
Delivery of Health Care
Surveys and Questionnaires
Research

ASJC Scopus subject areas

  • Surgery

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Comparative effectiveness studies examining patient-reported outcomes among children with cleft lip and/or palate : A systematic review. / Ranganathan, Kavitha; Vercler, Christian J.; Warschausky, Seth A.; MacEachern, Mark P.; Buchman, Steven R.; Waljee, Jennifer F.

In: Plastic and reconstructive surgery, Vol. 135, No. 1, 01.01.2015, p. 198-211.

Research output: Contribution to journalArticle

Ranganathan, Kavitha ; Vercler, Christian J. ; Warschausky, Seth A. ; MacEachern, Mark P. ; Buchman, Steven R. ; Waljee, Jennifer F. / Comparative effectiveness studies examining patient-reported outcomes among children with cleft lip and/or palate : A systematic review. In: Plastic and reconstructive surgery. 2015 ; Vol. 135, No. 1. pp. 198-211.
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