Community engagement and the human infrastructure of global health research

Katherine F. King, Pamela Kolopack, Maria Merritt, James V. Lavery

Research output: Contribution to journalArticle

Abstract

Background: Biomedical research is increasingly globalized with ever more research conducted in low and middleincome countries. This trend raises a host of ethical concerns and critiques. While community engagement (CE) has been proposed as an ethically important practice for global biomedical research, there is no agreement about what these practices contribute to the ethics of research, or when they are needed. Discussion: In this paper, we propose an ethical framework for CE. The framework is grounded in the insight that relationships between the researcher and the community extend beyond the normal bounds of the researcher-research participant encounter and are the foundation of meaningful engagement. These relationships create an essential "human infrastructure" - A web of relationships between researchers and the stakeholder community-i.e., the diverse stakeholders who have interests in the conduct and/or outcomes of the research. Through these relationships, researchers are able to address three core ethical responsibilities: (1) identifying and managing non-obvious risks and benefits; (2) expanding respect beyond the individual to the stakeholder community; and (3) building legitimacy for the research project. Summary: By recognizing the social and political context of biomedical research, CE offers a promising solution to many seemingly intractable challenges in global health research; however there are increasing concerns about what makes engagement meaningful. We have responded to those concerns by presenting an ethical framework for CE. This framework reflects our belief that the value of CE is realized through relationships between researchers and stakeholders, thereby advancing three distinct ethical goals. Clarity about the aims of researcher-stakeholder relationships helps to make engagement programs more meaningful, and contributes to greater clarity about when CE should be recommended or required.

Original languageEnglish (US)
Article number184
JournalBMC Medical Ethics
Volume15
Issue number1
DOIs
StatePublished - 2014

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infrastructure
health
Research
Research Personnel
community
stakeholder
Biomedical Research
Research Ethics
Global Health
Illegitimacy
respect
legitimacy
research project
moral philosophy
Outcome Assessment (Health Care)
responsibility
trend
Values

Keywords

  • Community engagement
  • Ethics
  • Global health
  • Legitimacy
  • Respect

ASJC Scopus subject areas

  • Issues, ethics and legal aspects
  • Health(social science)
  • Health Policy

Cite this

Community engagement and the human infrastructure of global health research. / King, Katherine F.; Kolopack, Pamela; Merritt, Maria; Lavery, James V.

In: BMC Medical Ethics, Vol. 15, No. 1, 184, 2014.

Research output: Contribution to journalArticle

King, Katherine F. ; Kolopack, Pamela ; Merritt, Maria ; Lavery, James V. / Community engagement and the human infrastructure of global health research. In: BMC Medical Ethics. 2014 ; Vol. 15, No. 1.
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